Wednesday I went to Dr. G’s (neurologist) office for another MRI to check the inflammation of my muscle fascia. Literally 2 seconds after getting dressed, I was called back in for a second 45-minute session in the tube, this time with dye. UGG! I mean FUGG!
The results showed that the inflammation that was huge in the beginning of all this is almost completely gone, which I can feel in my much improved flexibility. The best news was that Dr. G saw that what I could have sworn was a stick of butter under my muscle biopsy incision, you know, where ILLFRMT (It Looks Like Frankenstein Ravaged My Thigh), is actually a 4” x 4” pool of blood, not fluid, with no abscess and no inflammation. We are hopeful that the blood will just be absorbed within a few months. It was good news, but still, HAFATS (Hematomas Are Fugly And They Suck)!
Yesterday began with a 5am wake up call, then a 75-minute sunrise drive to City of Hope. I started at the lab with AFBT (Another F-ing Blood Test), then moved on to my second bone marrow biopsy. My first biopsy was ordered 2 months ago when my platelets were very low, but now that the red and white cells are also almost non-existent, my docs need to see what the hell is going on in there. (All three components of blood are made in the marrow.) I made it absolutely clear that I wanted to be sedated for the procedure, which otherwise is a wicked bitch – 2 holes are drilled into your hip bone and marrow is drawn out. I met my new bff (anesthesiologist), and he told me that my knock out drug was going to be Propofol, yes the same Propofol that was Michael Jackson’s undoing. He assured me that I would wake up, because I was being closely monitored, unlike the King of Prop, I mean Pop. I was prepped, hooked up to an IV, heart monitors, bp cuff, pulse monitor and oxygen, then I was flipped over pancake-style with hip bones exposed and marked. The next thing I knew I had bright pink juice, bone marrow and a piece of bone in tubes next to me and 2 holes in my back side to show for it. Todd quickly whipped out a Cliff bar and some water so I could take down my morning pile of pills. After an hour in recovery, I was told I could go, in other words, Beat It 🙂 I moon walked out of the room and down the hall to my appointment with Dr. P (hematologist/cell transplantation) and Dr. F (hematologist/department head). I ignored the nurses calling after me that I needed to be in a wheel chair.
Our meeting with Dr. P and Dr. F went very well. My morning blood test revealed that my white count was up quite dramatically, which was very encouraging. We will learn more after tomorrow’s blood test which precedes my 14th platelet transfusion (it just wouldn’t be the weekend without pumping strangers’ blood into my veins), and then even more on Monday after we receive the bone marrow biopsy results and I have yet AFBT (Another F-ing Blood Test).
We were feeling very HOPEful after our morning at City of Hope! We grabbed a couple of La Paloma burritos and hit the 210 east. As the local anesthesia began to wear off, and the biopsy pain started to settle into my hip, the pollo y frijoles wrapped in that heavenly homemade tortilla became my entire world.
Because INPEP (I’m Not Popping Enough Pills), my docs have prescribed a new thick liquid med called Mepron that will keep me from getting a dangerous pneumonia that often attacks immune-deficient patients. It looks, smells and tastes exactly like neon yellow high gloss lacquer – just thought you’d want to know.