I was so beyond elated to be back home on Monday night after spending 90 of the last 130 days in the hospital! I couldn’t have made it through without the unrelenting support of my family and friends! Special thanks to Todd, my mom and dad for driving up to City of Hope EVERY day to visit me, play games, watch movies and just fart around. I know that was a huge sacrifice on their part and I am so grateful. Mychaela made it after work several times and I saw Rex a few times between his SAE gigs and related sicknesses. Today is the 41st since my transplant ~ almost half way to the magic day 100 🙂 For the next 2 months, I will visit my new doc at COH for blood analysis and a check up for Graft vs. Host Disease, along with many other dangerous developments that I am very susceptible to at this time. Dr. F is so amazing! He’s a Trojan! He’s the department head, and the perfect combination of brilliance and fun 🙂 This morning’s visit went quite well. After seeing my blood counts, Dr. F had to double check he was looking at the correct chart! My whites, reds and platelets are flying! I am really hoping for no more transfusions! Early tomorrow I will be back up there for my 4th bone marrow biopsy (ouchie) to make sure everything looks good in there. I will go to once a week after a couple of months, then down to once a month, and so on, with 3 more bone marrow biopsies along the way (ouchie, ouchie, ouchie). At the 100 day mark, Dr. F will determine how much more I can do in public. As of now, I cannot go to any public place, no visitors, no plants in the house, very restricted diet, redonculus hand washing, tons of hydration, etc. Todd has completely transformed our house into a sterile clean room sitch.
Leason has recovered beautifully from his procedure which snagged 1 quart of his bone marrow from a series of drill holes in the hips. Ya! His follow-up doc appointments have confirmed that his blood counts are where they should be, and his drill holes have healed. The only concern (and it’s kinda a biggie) is that he has developed a rather large crack down the center of his buttock area.
Top 10 Reasons it’s Better at Home
10. No middle of night wake-ups for blood tests, infusions, vitals, etc.
9. Hospital food BLOWS.
8. Hospital bathroom has no heat, and I was there for December and part of Jan. (Ostrich skin to the max.)
7. No docs coming in at 6am to start prodding.
6. No more documenting everything that goes in and everything that comes out.
5. No need for band aids on my elbows due to the sand paper quality of hospital sheets.
4. Toilet – no details, just trust me.
3. I’m no longer hooked up to my IV tree 24/7. When they constantly pump you with hydration, you have to get up and pee every half hour, unplugging and rolling your tree into the sub-zero bathroom with you.
2. Having a bubble room directly across from the nurses’ station, sleeping is virtually impossible. The night shift is an insanely loud gossip group. I will never care that Teresa got sh*t faced, slept with Diego, and now has to figure out how to tell Isabelle.
1. No more randoms busting into my bubble to talk solely about my poop – SO f-ing annoying!
Trying to keep up the cool factor while in captivity: