I can’t believe I’m writing this, but it’s been THREE years since my transplant! Everything I’ve been able to do these past three years is
I love my Bronor! (Bro + Donor)
Dr. F has been reducing my meds over the past year, and as I took less and less immune suppressants, he watched me closely for any reactionary temper tantrums of my eyes, mouth, skin, etc. (signs of Graft vs. Host Disease). I am stoked to announce that I am now officially OFF all immune suppressants! A while back, I started stockpiling my empty med bottles. I’m gonna get my artsy fartsy sculpture groove on very soon.
Filtering through my empties, I compiled a list of all the various sh*t that’s run through my bod in the past 3 ½ years. As a kickback to you for deciding to take time out from wrapping, shopping, lobbying, cooking, decorating, campaigning, and caroling to read my platform today, you have been elected, as my delegate, to cast your ballot in my new game, “Pharmacandidates“! Hidden in the caucus below of my actual non-partisan meds are some that you could debate are not legit. HINT: look for the hanging chads!
So, my eyes continue to be my largest source of discomfort, especially all the little dark blobs that constantly float across my field of vision. Floaters are tiny clumps of gel or cells inside the vitreous, the clear gel-like fluid that fills the inside of your eye ball. What causes floaters? Anyone? Anyone? It’s when – anyone? It’s when this gel pulls away from – anyone? It’s when this gel pulls away from the back wall of the eye, resulting in – anyone? Resulting in a posterior vitreous detachment 🙂 This is common for people who: have undergone cataract operations – yep, have had YAG laser eye surgery – yep, have had inflammation inside the eye – yep. No surprise I have floaters. No surprise that the name of these little f-ers begins with that ultra descriptive 6th and most favorite letter.
I’m 100% sure you don’t want to hear any further bitching and moaning regarding the floaters in my eyes. Sorry, but I’m invoking rule 391.47A: keyboard power. You need to understand my peculiar gnat-swatting behavior and/or my inability to recognize my closest friends when they are standing right in front of me. You could call me a liar with pants aflame if I hash tagged #nofilter on my Grams, ’cause my view of the world looks through this:
Last month at my City of Hope blood test and check up, I saw Louisa, my next door neighbor while we lived on the transplant floor. She was in a wheel chair, because she does not have the strength to stand. She has had all of her teeth removed, because they were so damaged from the meds. Her hair has not grown back. She has not driven since her transplant (four days after mine), because her vision is so poor. Her lungs are so unhealthy, she’s now looking at a lung transplant. Yes, she survived, but she’s having a very rough time. My heart breaks for her and her family. Please think good thoughts, and say a little prayer, if you are so inclined, for Louisa!
Jared finished Walking Across Amarrowca! After 7 months of walking and swabbing, he finally arrived at the USA’s west coast 🙂 The day started with the Be The Match 5K in Long Beach, CA, where Jared, through a human tunnel of hundreds of supporters, finished his loooong trek by traversing the sand and jumping into the Pacific.
Click on the image below to watch a short segment which appeared on the news:
I am so thankful to all that supported my team with donations and by walking with us! After the event in Long Beach, Todd and I hosted a celebration of Jared’s accomplishment at our house in Laguna Beach.
For the previous two years, we have had a living Christmas tree, and this year is no different. This year, however, we requested the most misfit tree of all the trees available. I wanted the tree no one else wanted. The tree that, year after year, is humiliated, watching all the other trees get chosen, schoolyard dodgeball style. The tree that, despite its twisted trunk, deformed branches, grotesque shape, missing scent, resident spiders and sparse needles, survived. Against the odds, this fighter is the centerpiece of our family’s holiday celebration. Merry Christmas and Happy Holidays to you and yours!