Transitioning Back to “Normal”

I’m feeling more and more like my prick (pre + sick) self lately, and my last visit to City of Hope’s Main Lab waiting room confirmed it.  Putting my new vision to use, I surveyed my fellow patients, all there for AFBT – Another F-ing Blood Test, and I realized I was the ONLY one without […]

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On Second Thought

SECOND CHANCE I’ve been thinking a lot lately about how lucky and blessed I am to have a second chance at life.  A do-over.  If I had been born a few decades earlier (before bone marrow transplants), I wouldn’t have seen my 50th birthday.  If my brother, Leason, had not been a match, I may […]

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The Eyes Have It

 Have you ever tried to see through Vaseline?  I have 🙂  My eyes have been taken hostage by Graft vs. Host Disease and in addition to that, TDVPHCCIBP – The Dreaded ‘Vitamin P’ (Prednisone) Has Caused Cataracts In Both Peepers.  My newest team member, Dr. S3 diagnosed me with multiple cataracts and told me that I […]

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Who Gives a Flying F*@k?

Who gives a flying f*@k?  I’ll tell you who gives a flying f*@k:  Marvin Drandell gives a flying f*@k, that’s who!  Marvin, Todd’s best buddy from grade school had a flying f*@k sent to me, and I couldn’t be more ecstatic with his kind and thoughtful gesture 🙂  Don’t you want someone to give a […]

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Home At Last!

After 43 hellish days and nights, I was released from the City of Hope’s Helford Hospital last week.  I left my “bubble” twice during that time, once for a CT scan and once for a bronchoscopy (I started my stay with a lung infection/pneumonia, so they ran a tube down into my lung to check […]

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Hold Your Ho Ho Ho rses

Christmas came early for me this year!  I must have been a very good girl, because I got the best toy of all – a PICC line!  I know you’re all jealous as hell.  This device allows me to avoid the countless pokes my condition brings with it.  It’s a long-term port that has 2 […]

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Game On – Equine Style

We finally heard from Dr. P with my latest bone marrow biopsy results.  It was not good news.  I have severe Aplastic Anemia, which means my bone marrow has failed.  Once again, I’ve been given a rare diagnosis, with approximately 2 to 3 Americans in every 1,000,000 having received it.  WHAT??? I was always told […]

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