Who gives a flying f*@k? I’ll tell you who gives a flying f*@k: Marvin Drandell gives a flying f*@k, that’s who! Marvin, Todd’s best buddy from grade school had a flying f*@k sent to me, and I couldn’t be more ecstatic with his kind and thoughtful gesture 🙂 Don’t you want someone to give a […]
After 43 hellish days and nights, I was released from the City of Hope’s Helford Hospital last week. I left my “bubble” twice during that time, once for a CT scan and once for a bronchoscopy (I started my stay with a lung infection/pneumonia, so they ran a tube down into my lung to check […]
Christmas came early for me this year! I must have been a very good girl, because I got the best toy of all – a PICC line! I know you’re all jealous as hell. This device allows me to avoid the countless pokes my condition brings with it. It’s a long-term port that has 2 […]
We finally heard from Dr. P with my latest bone marrow biopsy results. It was not good news. I have severe Aplastic Anemia, which means my bone marrow has failed. Once again, I’ve been given a rare diagnosis, with approximately 2 to 3 Americans in every 1,000,000 having received it. WHAT??? I was always told […]
HOPE – (Have Only Positive Expectations) Friday was the best day in a long time. We drove up to City of Hope in Duarte, where my Newport team of docs decided I need to be at this point. Didn’t really know where the hell Duarte was previously, but we now have the route memorized and […]
Before I ever had a transfusion, I thought of them as scary, critical and dangerous. I never EVER thought I would need one. At this point, I’ve had 14 of them, and I now equate a transfusion to a chill sesh – relaxing in a lounge chair, reading, watching TV or a movie, and visiting […]