Who Gives a Flying F*@k?

Who gives a flying f*@k?  I’ll tell you who gives a flying f*@k:  Marvin Drandell gives a flying f*@k, that’s who!  Marvin, Todd’s best buddy from grade school had a flying f*@k sent to me, and I couldn’t be more ecstatic with his kind and thoughtful gesture 🙂  Don’t you want someone to give a […]

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Home At Last!

After 43 hellish days and nights, I was released from the City of Hope’s Helford Hospital last week.  I left my “bubble” twice during that time, once for a CT scan and once for a bronchoscopy (I started my stay with a lung infection/pneumonia, so they ran a tube down into my lung to check […]

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Hold Your Ho Ho Ho rses

Christmas came early for me this year!  I must have been a very good girl, because I got the best toy of all – a PICC line!  I know you’re all jealous as hell.  This device allows me to avoid the countless pokes my condition brings with it.  It’s a long-term port that has 2 […]

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Game On – Equine Style

We finally heard from Dr. P with my latest bone marrow biopsy results.  It was not good news.  I have severe Aplastic Anemia, which means my bone marrow has failed.  Once again, I’ve been given a rare diagnosis, with approximately 2 to 3 Americans in every 1,000,000 having received it.  WHAT??? I was always told […]

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Hope

HOPE – (Have Only Positive Expectations) Friday was the best day in a long time.  We drove up to City of Hope in Duarte, where my Newport team of docs decided I need to be at this point.  Didn’t really know where the hell Duarte was previously, but we now have the route memorized and […]

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Transfusion Fun 101

Before I ever had a transfusion, I thought of them as scary, critical and dangerous.  I never EVER thought I would need one.  At this point, I’ve had 14 of them, and I now equate a transfusion to a chill sesh – relaxing in a lounge chair, reading, watching TV or a movie, and visiting […]

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