Transfusion Fun 101

Before I ever had a transfusion, I thought of them as scary, critical and dangerous.  I never EVER thought I would need one.  At this point, I’ve had 14 of them, and I now equate a transfusion to a chill sesh – relaxing in a lounge chair, reading, watching TV or a movie, and visiting […]

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Collapsing Cell Counts, Increased Injections and Frivolous Footnotes

I’m the luckiest person in the world because my army of supportive family and friends is THE BEST medicine! Online shopping is the second best medicine. Blasting Tom Petty and Donavon Frankenreiter is the third best medicine. It’s a love/hate relationship with platelets, red blood cells and white blood cells. Trojan football is going to […]

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What Cide Effectz?

So, I’m staring at this ever-growing mass of pill bottles and ever-expanding list of procedures, and I’m starting to wonder about all of the combined potential side effects I may have the pleasure of experiencing due to all this sh*t I’m exposing my body to.  Don’t be alarmed, I won’t list all 2,361 here, just […]

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Don’t Hate Me Because My Esophagus is Beautiful

I want to sincerely thank everyone from the bottom of my heart for the kind compliments on the beauty of my esophagus!  It means so much to me!  (I also just like saying the word esophagus.) I thoroughly enjoyed a very luxurious weekend at home and not at my HAFH (Hoag Away From Home)!  It’s […]

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More Platelets, a Pair of …oscopies and Move In Day

Due to the constant flow of requests for a glimpse of my esophagus, I am now thrilled to be able to provide you with this, a glimpse of my esophagus for your viewing pleasure. I met with Dr. M2 (gastroenterologist) to talk about having an upper endoscopy and a colonoscopy to try to solve the […]

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We’ve Got a Bleeder!

The adventure continues!  Just found out I’ve got internal bleeding 🙂  My team and I are hoping we can BIOTP, (Blame It On The Prednisone) and not something more serious.  To rule out the more serious, I had CT scans of my chest, abdomen and pelvis.  The procedure was not a big deal.  I just […]

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Punching the Frequent Transfusee Card

At this point , my platelets were hell bent on cliff diving, so I was being tested at least every other day.  What’s OMP (One More Poke) when your arms are already one massive bruised war zone?  There had been little effect, if any, from the Solumedrol infusions, so my team decided to put me […]

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