There Once Was a Girl from Nantucket

There once was a girl from Nantucket … Oh wait, scratch that – I think we all know where that’s headed 🙂 Ah hem… There once was a chick from Laguna Got the sniffles once in a blue moona. One morning she woke And without any provoke, Her muscles felt they’d been hit by a […]

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Home at Last! (Again)

I was so beyond elated to be back home on Monday night after spending 90 of the last 130 days in the hospital!  I couldn’t have made it through without the unrelenting support of my family and friends!  Special thanks to Todd, my mom and dad for driving up to City of Hope EVERY day […]

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We Have a Plan

So, we have a plan.  I will check into City of Hope on December 7 to begin my bone marrow transplant festivities.  On the morning of the 7th I will receive a Hickman catheter, which is wider gauged than the PICC line I now have in my left arm.  I guess marrow is thicker than […]

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Game On – Equine Style

We finally heard from Dr. P with my latest bone marrow biopsy results.  It was not good news.  I have severe Aplastic Anemia, which means my bone marrow has failed.  Once again, I’ve been given a rare diagnosis, with approximately 2 to 3 Americans in every 1,000,000 having received it.  WHAT??? I was always told […]

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Bad Ass or Blows?

My Over-The-Top Loving Family – BAD ASS in the most awe-inspiring way Having 12 Doctors Working to Heal Me – BAD ASS in the most stellar way Waking Up to the Joys of the Newest Prednisone Side Effect:  Mouth Ulcers Covering the Inside of My Cheeks – BLOWS in the most f-ed up, merciless way […]

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Marrow, Moon Walking and Mid-day Mexi Magic

Wednesday I went to Dr. G’s (neurologist) office for another MRI to check the inflammation of my muscle fascia.  Literally 2 seconds after getting dressed, I was called back in for a second 45-minute session in the tube, this time with dye.  UGG!  I mean FUGG! The results showed that the inflammation that was huge […]

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WT(EF)?

Next up, a visit with Dr. G (neurologist), who had seen a few cases over his career that were somewhat similar to mine.  He checked me out and did an MRI on my thighs (because they were some of the most affected muscles) right there in his office.  The following day, I went to USC […]

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