Home at Last! (Again)

IMG_1060

I was so beyond elated to be back home on Monday night after spending 90 of the last 130 days in the hospital!  I couldn’t have made it through without the unrelenting support of my family and friends!  Special thanks to Todd, my mom and dad for driving up to City of Hope EVERY day to visit me, play games, watch movies and just fart around.  I know that was a huge sacrifice on their part and I am so grateful.  Mychaela made it after work several times and I saw Rex a few times between his SAE gigs and related sicknesses.  Today is the 41st since my transplant ~ almost half way to the magic day 100 🙂  For the next 2 months, I will visit my new doc at COH for blood analysis and a check up for Graft vs. Host Disease, along with many other dangerous developments that I am very susceptible to at this time.  Dr. F is so amazing!  He’s a Trojan!  He’s the department head, and the perfect combination of brilliance and fun 🙂  This morning’s visit went quite well.  After seeing my blood counts, Dr. F had to double check he was looking at the correct chart!  My whites, reds and platelets are flying!  I am really hoping for no more transfusions!  Early tomorrow I will be back up there for my 4th bone marrow biopsy (ouchie) to make sure everything looks good in there.  I will go to once a week after a couple of months, then down to once a month, and so on, with 3 more bone marrow biopsies along the way (ouchie, ouchie, ouchie).  At the 100 day mark, Dr. F will determine how much more I can do in public.  As of now, I cannot go to any public place, no visitors, no plants in the house, very restricted diet, redonculus hand washing, tons of hydration, etc.  Todd has completely transformed our house into a sterile clean room sitch.

My Donor, My Hero, My Lifesaver:  Leason Pomeroy, IV Update:DSC_1482_2

Leason has recovered beautifully from his procedure which snagged 1 quart of his bone marrow from a series of drill holes in the hips.  Ya!  His follow-up doc appointments have confirmed that his blood counts are where they should be, and his drill holes have healed.  The only concern (and it’s kinda a biggie) is that he has developed a rather large crack down the center of his buttock area.

Top 10 Reasons it’s Better at Home

10.  No middle of night wake-ups for blood tests, infusions, vitals, etc.

9.  Hospital food BLOWS.

8.  Hospital bathroom has no heat, and I was there for December and part of Jan. (Ostrich skin to the max.)

7.   No docs coming in at 6am to start prodding.

6.  No more documenting everything that goes in and everything that comes out.

5.  No need for band aids on my elbows due to the sand paper quality of hospital sheets.

4.  Toilet – no details, just trust me.

3.  I’m no longer hooked up to my IV tree 24/7.  When they constantly pump you with hydration, you have to get up and pee every half hour, unplugging and rolling your tree into the sub-zero bathroom with you.

2.  Having a bubble room directly across from the nurses’ station, sleeping is virtually impossible.  The night shift is an insanely loud gossip group.  I will never care that Teresa got sh*t faced, slept with Diego, and now has to figure out how to tell Isabelle.

1.  No more randoms busting into my bubble to talk solely about my poop – SO f-ing annoying!

Trying to keep up the cool factor while in captivity:

IMG_1038

Posted by

I am a survivor of two extremely rare diseases, thanks to over 100 blood transfusions and ultimately, a bone marrow transplant. My blog, joselynsbrawl.com, chronicles my adventures through medical offices, operating rooms, clinics, transfusion centers, hospital transplant floors, victory celebrations, and finally my bucket list items – all with a humorous and sometimes profane twist. My goal is to inspire others not to give up on life or anything else, and to understand that it’s actually possible to enjoy any experience, even battling a life-threatening illness (or two).

70 thoughts on “Home at Last! (Again)

  1. Thi is all great news Jos. Wonderful that your blood levels are finally going in the right direction. Great great news. Hugs to your whole family!!!!! 2013 looking so much brighter.
    Karen kushner

    Like

  2. I was trying to read your Blog to Tony but kept getting too chocked up. We are so happy for you Joselyn. Loved your beach picture. Linda & Tony Ellis

    Like

  3. Such great news…..so happy for you all……how wonderful to be back home…….celebration day just around the corner!
    Love …..caron steve dana and steven.

    Like

  4. So happy you are home! There is nothing better than the Pacific ocean when you haven’t seen it in awhile. Hope all continues on the upswing! Diana Blatz

    Like

  5. So happy you’re home Jos!! Looking forward to the next big benchmark. How awesome is it going to be to have a nice dinner out..? With wine!!

    Like

  6. So happy for you!!! Amazing and wonderful news and so impressed by your beautiful family! Todd is beyond! Love love to you all!

    Like

  7. Yeah!!!! We are so happy you are on the road to recovery!! …along with a million other people! Things are looking up!!! 🙂

    XOXOX Steve and Tami

    Like

  8. THERE’S NO PLACE LIKE HOME ! Good thing you look good in a hat and a mask!
    You continue to amaze me and I wish there was something I could do for you…but I know I cant. You havent missed much in the outside world….Obama is president…again! Hilary Clinton can never have a decent hair do, Swine flu is
    back (your look is very trendy!) Justin Bieber and Taylor Swift duke it out for the
    song chart, and Im starting to feel like Manti Te’o because we talk on line but
    we’ve never met !!!! HA! Sending some kiss/hugs your way! Martha Olson

    Like

  9. That’s Awesome Jos! Home is the best medicine. Glad to hear Leason is recovering well too. You have a lot of angels looking over you!!! As soon as you get the clearance we’re going to celebrate! xo, doc & nettie

    Like

  10. Answered Prayers!!!!! There is truly no place like home and we are so very, very happy that you are in yours. Added bonus: pretty sure Todd doesn’t want to talk about your poop either! Take care sweet one and stay germ free! Much love to you and your beautiful family.

    Like

  11. Yeah! Finally a great post! So happy you are at home and free! Now you can have a little privacy and peace! You look great and with the ominous threat of flu, I might want to borrow a few masks.
    You are still in my prayers!
    Julie

    Like

  12. so happy to hear your home! what great news! I’m thrilled to see things are going in right direction too…all positive. love reading your posts…you’re sense of humor is hysterical and always makes me laugh. keep thinking positive thoughts and youre always in my prayers!

    Like

  13. Patti says. Read your wonderful blog here at Julie’s. oh so excited for you. I shall find some surprises to send….can hardly
    Wait to see you in person! Just saw a movie at home caled
    The big year. Se it if you can! And big miracle. Both r easy to watch and have happy endings like your story!
    Love, Patti

    Like

  14. Hi Jos ~ Tom and Todd had lunch at the beginning of this month. Tom shared with me about their time together. I wanted you to know how incredibly touched I was (and always have been) at the love and devotion you and Todd have for each other. I cannot and will not even try to fathom what you have been through these past seven months, and it is no surprise that Todd has been there every step of the way, as well as many others. Please know that Tom and I have prayed for you both, and will continue to. Yours is truly a love story with Todd, and I am honored to have been witness to it. May 2013 bring a long overdue Mitchell/Miller date night!

    Like

  15. Gee but it’s great to be back home! Home is where you want to beeeeee! (apologies to Paul Simon for borrowing these 2 lines!)

    Your amazing spirit is making the recovery happen Jos! Such fantastic news!

    Every day you get a little bit better!

    Steve

    Like

  16. Dear Jos, Congrats to you, Leason, and the docs for your miraculous progress. You are on the mend and because Leason is a perfect match the G/H issues should be minimal as your counts get higher and stronger. I am relatively sure that Leason would like to keep that crack rather than become full of s–t which he is certainly not!! He is a number 1 hero for sure. You are progressing exactly as our Kappa Sig Bro Dan was at this same time in his post BMT regimen from his sister in 1991. Your post made my day and as always, anything you need, the answer is yes! I’m even ready to forgive SAE Rex for his misguided choice. You said sicknesses, I hope Rex is feeling better too. Nurse Todd has his hands full which coincides with his full heart, and is love for you!
    Blessings Jos, Bart

    Like

  17. Congratulations on reaching this new milestone in your journey! When I read your blog, it makes me both laugh and cry. I am in awe of your strength, your humor, and your ability to write it all so beautifully. Welcome home!

    Like

Comment (pretty please!)

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out / Change )

Twitter picture

You are commenting using your Twitter account. Log Out / Change )

Facebook photo

You are commenting using your Facebook account. Log Out / Change )

Google+ photo

You are commenting using your Google+ account. Log Out / Change )

Connecting to %s