I DON’T HAVE CANCER!!! My bone marrow biopsy came back clear! Special Japanese dinner with VERY special champagne brought by my parents to celebrate the good news.
Dr. G (neurologist) suspected Eosinophilic Fasciitis, and he ordered a full muscle biopsy to confirm his suspicions, so I met with my surgeon, Dr. S2 to go over what to expect on my big day at Hoag Hospital. The only other times I have ever checked into a hospital was to deliver my 2 children, the last of which was 21 years earlier. Sounded like a piece of cake, and a piece of cake – German chocolate – sounded really good about now. Dr. M1 (infectious disease specialist) did not find anything in any of the massive amounts of tests she ran, so the team was focused on EF, pending the muscle biopsy results. On my most recent blood tests, my platelets were starting to tank, and that’s not ideal when you are going into surgery, so Dr. S1 (oncologist/hematologist) ordered a platelet transfusion immediately prior to surgery. Early Thursday morning, I checked into Hoag and had the transfusion in the pre-op room. I arrived with 2 flawless (ha!) thighs and emerged from the operating room with a 2″ long, 1/2″ wide, 1 3/4″ deep section of my left quadricep, fascia, and skin on its way to Long Beach Memorial’s pathology lab. ILLFRMT (It Looks Like Frankenstein Ravaged My Thigh)
ATTENTION: Now accepting entries for alternative stories to explain what is developing into a gnarly scar on my thigh. Winning entry will receive a wonderful prize! Make sure your story is awe-inspiring, lavish, astounding, thrilling, and glorious 🙂
JOSELYN'S BRAWL 
Shark bite from an unknown water source high on Mt. Kilimanjaro.
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I’d say that’s the winner (for the prize)!
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Hi Jos – it’s me Seta – when I saw this picture it reminded me of that fuzzy worm that I encountered on my regular visits to the forest by our house in the countryside; I must’ve been about 10-11 and a bunch of us girls, boys would go and play in the forest close by, and on one of those days when I was trying to climb a tree, I saw this fuzzy furry creature stuck on the tree trunk and when I touched it, it stuck on my hand and started crawling on my skin – you should’ve seen me – I was beside myself, screaming, yelling and running like I saw a ghost – shaking my hands to get the thing off of me. I was so friggin’ scared I almost sh-t myself (you know what I mean)..at the end it got off me – like yours will do 🙂 love – Seta
PS: I will be in Armenia in September (will ask Todd for your toothbrushes, yes?)
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Industrial accident with a sewing machine while guest teaching a class (as the former Magna Cum Laude graduate) at FIDM in Los Angeles?
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Deep sea fishing accident. Pirates overtook your boat and in the fierce sword fight you suffered this gash to your leg. However, upon looking into the eyes of the pirate, Johnny Depp?, he fell in love with you, swept you up and carefully tended to your wound aboard his yacht. He too served you champagne in order to kill the pain of an at sea wound suturing. This whole Shulman’s Syndrome is just a bad dream you had while slumbering in the Caribbean sea.
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OOOO, the competition if fierce!
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bookmaгked!!, I ⅼove your websitе!
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Hey you, another EF patient here. All the things you’re describing here sounds so familiar. I got my diagnose after more than 6 months of tests, scans and biopsies. I was also checked out for cancer, MS-disesase etc. so the final diagnose was indeed a relief. Now I’m on prednisolone. It made almost all of my symptoms disappear but now they’ve slowly come back when the dosage’s been reduced. Anyhow this is better than where we started and I’m lucky to be alive and with a relatively innocent disease. Greetings from Finland! 🙂
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Hey you, another EF patient here. All the things you’re describing here sounds so familiar. I got my diagnose after more than 6 months of tests, scans and biopsies. I was also checked out for cancer, MS-disesase etc. so the final diagnose was indeed a relief.
Now I’m on prednisolone medication. It made almost all of my symptoms disappear but now they’ve slowly come back when the dosage’s been reduced. Anyhow this is better than where we started and I’m lucky to be alive and with a relatively innocent disease. Greetings from Finland!
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Hello Anna from Finland!
Thank you for checking out my blog… Welcome to the EF family ~ a rare bunch 🙂 I’m glad to hear that Prednisone has been successful in keeping your symptoms at bay. How many milligrams per day are you taking? How are your blood counts? I wish you all the best in your treatment, recovery and ultimate cure! Are you in Helsinki? I visited there once and loved it! Such a beautiful place! Joselyn
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