Sushi, Champagne, Platelets, and a Scalpel

I DON’T HAVE CANCER!!!  My bone marrow biopsy came back clear!  Special Japanese dinner with VERY special champagne brought by my parents to celebrate the good news.

Dr. G (neurologist) suspected Eosinophilic Fasciitis, and he ordered a full muscle biopsy to confirm his suspicions, so I met with my surgeon, Dr. S2 to go over what to expect on my big day at Hoag Hospital.  The only other times I have ever checked into a hospital was to deliver my 2 children, the last of which was 21 years earlier.  Sounded like a piece of cake, and a piece of cake – German chocolate – sounded really good about now.  Dr. M1 (infectious disease specialist) did not find anything in any of the massive amounts of tests she ran, so the team was focused on EF, pending the muscle biopsy results.  On my most recent blood tests, my platelets were starting to tank, and that’s not ideal when you are going into surgery, so Dr. S1 (oncologist/hematologist) ordered a platelet transfusion immediately prior to surgery.  Early Thursday morning, I checked into Hoag and had the transfusion in the pre-op room.  I arrived with 2 flawless (ha!) thighs and emerged from the operating room with a 2″ long, 1/2″ wide, 1 3/4″ deep section of my left quadricep, fascia, and skin on its way to Long Beach Memorial’s pathology lab.  ILLFRMT (It Looks Like Frankenstein Ravaged My Thigh)

ATTENTION:  Now accepting entries for alternative stories to explain what is developing into a gnarly scar on my thigh.  Winning entry will receive a wonderful prize!  Make sure your story is awe-inspiring, lavish, astounding, thrilling, and glorious 🙂

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I am a survivor of two extremely rare diseases, thanks to over 100 blood transfusions and ultimately, a bone marrow transplant. My blog,, chronicles my adventures through medical offices, operating rooms, clinics, transfusion centers, hospital transplant floors, victory celebrations, and finally my bucket list items – all with a humorous and sometimes profane twist. My goal is to inspire others not to give up on life or anything else, and to understand that it’s actually possible to enjoy any experience, even battling a life-threatening illness (or two).

7 thoughts on “Sushi, Champagne, Platelets, and a Scalpel

  1. Hi Jos – it’s me Seta – when I saw this picture it reminded me of that fuzzy worm that I encountered on my regular visits to the forest by our house in the countryside; I must’ve been about 10-11 and a bunch of us girls, boys would go and play in the forest close by, and on one of those days when I was trying to climb a tree, I saw this fuzzy furry creature stuck on the tree trunk and when I touched it, it stuck on my hand and started crawling on my skin – you should’ve seen me – I was beside myself, screaming, yelling and running like I saw a ghost – shaking my hands to get the thing off of me. I was so friggin’ scared I almost sh-t myself (you know what I mean) the end it got off me – like yours will do 🙂 love – Seta

    PS: I will be in Armenia in September (will ask Todd for your toothbrushes, yes?)


  2. Industrial accident with a sewing machine while guest teaching a class (as the former Magna Cum Laude graduate) at FIDM in Los Angeles?


  3. Deep sea fishing accident. Pirates overtook your boat and in the fierce sword fight you suffered this gash to your leg. However, upon looking into the eyes of the pirate, Johnny Depp?, he fell in love with you, swept you up and carefully tended to your wound aboard his yacht. He too served you champagne in order to kill the pain of an at sea wound suturing. This whole Shulman’s Syndrome is just a bad dream you had while slumbering in the Caribbean sea.


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