I am a survivor of two extremely rare diseases, thanks to over 100 blood transfusions and ultimately, a bone marrow transplant. My blog, joselynsbrawl.com, chronicles my adventures through medical offices, operating rooms, clinics, transfusion centers, hospital transplant floors, victory celebrations, and finally my bucket list items – all with a humorous and sometimes profane twist. My goal is to inspire others not to give up on life or anything else, and to understand that it’s actually possible to enjoy any experience, even battling a life-threatening illness (or two).
If you are reading this directly in your email, click on the title, and the videos will load 🙂 I haven’t bothered you in quite a while, and for that, you are welcome. The main reason you have been left in peace is that I’ve been busy living my extended life, making the most of […]
My birthday came around again (dammit), and to ease the pain, my pals Jae, Kristin and Stephanie took me on another Buttkick List adventure. This time we migrated to a music store in Huntington Beach, CA. You see, I’ve never had a musical lesson in my life, so playing a song on an instrument is was […]
I recently attended a fundraiser for the Orange County Ronald McDonald House (an incredibly wonderful facility that allows families to stay close to their seriously ill children being treated at hospitals in Orange County), and as I perused the silent auction offerings, one item stood out to me as if sirens were blaring and lights […]
I know. I suck at writing consistent blog posts. I would give myself an F, but I guess that’s OK, since I really dig that beautiful letter 🙂 No offense. I really do appreciate you reading my posts; it’s just kinda difficult to pause my new life and sit my ass down to write. My […]
Hello! It’s been a while since I’ve pestered you with a post. I’m sure you’ve enjoyed your vacation, but time’s up! As you may know, the five year post-transplant mark passed, and I’m feeling great! Thanks again for all of the incredible + crazy = incraydible support!!! At my last COH visit for AFBT and […]
To commemorate my fifth transplanniversary, I got me some ink and placed another √ on my Buttkick List. A little dark purple gift box with a cursive L for a bow to be exact. I had it placed around my transplant scar, where Leason’s miracle marrow entered my body through the PICC line in my […]
In New York, the western part, On micro roads, not found on a chart, Fields, farms and pastures galore, Acres between each lonely barn door. Cruising down the tiny lanes, Suddenly, my neck swivels and cranes! There, riding on her bladed throne, A country woman, her grass half-mown. “Look!” I squeal, and point […]
Southbound, Auckland to Taupo. T minus 3.5 hours. Loads of time. The beautiful New Zealand forests and sheep pastures put on a leisure show for us. The Kiwi peeps are major friendly, but their cars are sydlecix. The white fluffs of wool are floating by my passenger window on the left side. Ya, those sheep […]
Gliding is something that has long fascinated me, but I didn’t know much about it, like how the f a plane with no engine can stay in the air and be controlled well enough for the passengers to survive the flight. The first thing I always devour when checking into a hotel, lodge, inn, or […]
I recently received a message from a woman who found me through a Google search, which pointed her to this blog. Her sister has been diagnosed with eosinophilic fasciitis (Shulman’s Syndrome) AND aplastic anemia. Those are the same extremely rare diseases that I was diagnosed with a few years ago. I would venture to guess […]