I was so honored to have Coach Lance Stewart and the Laguna Beach Varsity Girls Volleyball Team dedicate their post season to me! I couldn’t believe it! They added ‘JM’ to their jerseys and signs were distributed to the crowd. I was so disappointed that I couldn’t attend and watch the matches, but Todd and Mychaela went and they thought it was very awesome 🙂 Thanks and congratulations to Lance and his players!
So, being home for the last 3 weeks has not been exactly what I expected. The 31 pills I take daily are highly recommended if you want to feel nauseous, tired, weak and fugly. I’ve discovered what may be my favorite activity ever: itching! Yes, itching, as in: I want to itch my f-ing skin off. My delightful ATG rash has now given way to the driest, scaliest skin on record. You can look it up. I’m in the Guiness Book of World Records as having the gnarliest dry skin of any human being of all time. So I got that going for me, which is nice. The house is covered in a beautiful white blanket of what appears to be the winter’s first snow, but upon closer inspection, you can see it’s my skin 🙂
Finding a comfortable sleeping position is a formidable task, as I try to avoid putting pressure on my left thigh’s hematoma, my left arm’s PICC line with its two ports and bulky dressing, and my upper right butt cheek where my bone marrow biopsy was done. For some reason, this wound has decided to open up and release some mystery goo – pretty much hurts like a mo-fo. Due to my meds, my kidneys are on the verge of joining my bone marrow and shutting down, but I need these meds which are damaging my kidneys to keep me alive, so I continue taking them. Dr P has me drinking 2.5 liters of Gatorade a day to help the good ‘ol kidneys in their fight to survive.
I’m visiting City of Hope twice a week now, where I have my blood labs drawn, have either a CT-scan, X-ray or MRI of my lungs or hematoma, visit Dr. P and have blood and/or platelet transfusions. I get to wear one of these beautiful masks to keep the germ count down and to make sure I’m feeling totally claustrophobic while I’m there. I’m usually either sleeping or itching on the way up and the way back down. One of these next visits will include jamming an enormous gauged needle into my lame ass hematoma to drain it. Super fun, right? This Friday will be decision day whether I schedule a bone marrow transplant or have a miracle blood count, which would indicate that the ATG horse serum worked. I am quite sure that I will be having a transplant, because there has been no upward trend on my counts. Thank God for my little bro!