I am writing to you today from a somewhat inverted position. I am lying on the floor with my feet above my heart. Due to several of my meds’ side effects, my feet have been blowing up beyond recognition and have become very painful to walk on, let alone fit into any shoes you could possibly refer to as “cute.” In fact, IHFATEOML – I Have Footballs At The End Of My Legs.. and that’s not an April Fools ~ I’ll prove it:
I am now an official supplier to the NFL.
Last week, I was able to go out to dinner for the first time in 7 months! It was a wonderful, emotional experience for Todd, Mychaela, Rex and me. We enjoyed our meal, our bottle of special wine from Uncle Lynn, and each other for 3 hours. We even had a couple of surprise deliveries thanks to Guy Kornblum and Tina and Ken Ryder that made it even more special 🙂 The only f-ed up part of the evening was when the phrase “bone marrow” jumped off the appetizer page. I nearly hurled right there on Charlie Palmer’s exquisite leather booth!
My counts from last week’s appointment with Dr. Fantastic were pretty good. My white cells are holding and are in the normal range. (Never thought I’d write that sentence.) My platelets blasted upwards to nearly 200, putting me in the normal range, so I can no longer say IHNFP – I Have No F-ing Platelets. Gonna miss that little acronym 🙂 My red cells remained the same, low. We were told that the reds are the last to recover way back when we started on this transplant journey. Dr. F wants to see the red cell count rise before he lets me go on an every other week schedule at City of Hope. This would also mean the removal of my PICC line, because it needs to be cleaned and re-dressed every week. This would be okey dokey with me, because it’s starting to bug the sh*t out of me. I can’t wear anything with slightly tight sleeves, and it’s just fugly and annoying. I can’t believe it’s come to the point where I’m complaining about my PICC. It wasn’t too long ago when I thought PLABA – PICC Lines Are Bad Ass. I really won’t mind getting poked twice a month, compared to getting poked twice a day, pre-PICC.
I can’t wait for this week’s meeting, because I believe my red cells are going to take charge, be the boss and make Dr. F happy! After my appointments, Todd and I are going to meet Mychaela at the Disney Studios, where she will take us for a tour and some lunch. I can’t wait to see where she works and maybe meet a mouse!
Yesterday, I worked in the kitchen all day, donning my bunny beanie from Mychaela, preparing an Easter dinner feast. It was delightful having the kids home. We had a great day unloading Easter baskets, watching March Madness and then scarfing down butterflied leg of lamb stuffed with spinach and pine nuts. I was very sad to see the LA-bound caravan pull out of our driveway. Wasn’t it just yesterday that they were 7 and 5 and couldn’t go to sleep because of all the chocolate eggs they had consumed?
I guess it couldn’t have been yesterday, because tomorrow I turn the Big 5-Oh! I know, I know, you’re all thinking, “that’s not possible – she’s so much younger than that – this must be a super lame April Fools.” Alas, it’s true, but just a short few months ago, I wasn’t sure I was going to make it to the half century mark. I’m SO grateful to be alive, even though IHFATEOML, and I look forward to a fun, productive second half century. I vow to do something new every week 🙂