Cha Cha Cha Chia

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Cha Cha Cha Chia!  (Did you notice the letter that was coincidentally (or not) assigned to the last pic? 🙂

UPDATE:  Todd and I drove once more to City of Hope today for my weekly blood test, PICC dressing change, and check up with Dr. F.  Because IHFATEOML – I Have Footballs At The Ends Of My Legs, Dr. F has lowered my dose of blood pressure meds in hopes of shrinking my feet from NFL sized footballs to jr. peewee size.  I am taking blood pressure meds to control my elevated blood pressure, due to another med I’m taking.  Under normal circumstances, I normally have abnormally low blood pressure, as a norm 🙂

I have enjoyed a couple of recent outings beyond the bubble:  After last week’s COH appointments, Todd and I visited Mychaela at the Disney Studios, where she toured us around and took us to lunch.  So much f-ing fun!  Then last weekend, my mom, Mychaela and I sipped tea, British style, at Pelican Hill Resort.  So civilized we were with our scones and Devonshire cream ~ a far, far, far cry from tea on the 6th floor of the hospital!  Tomorrow night, I am going to get to see Todd’s family!  It’s been soooooo long!

Our good friend, Dana Kent, is soon going to run the San Diego Rock n’ Roll Half Marathon in honor and memory of her father (who passed away from Leukemia when she was very young) and in honor of me!  She is such a sweetie and I truly admire, respect and appreciate her commitment!  Here is the link to her info page if you want to learn more or donate to help with research for these horrific diseases.

http://pages.teamintraining.org/ocie/rnr13/danakent

Posted by

I am a survivor of two extremely rare diseases, thanks to over 100 blood transfusions and ultimately, a bone marrow transplant. My blog, joselynsbrawl.com, chronicles my adventures through medical offices, operating rooms, clinics, transfusion centers, hospital transplant floors, victory celebrations, and finally my bucket list items – all with a humorous and sometimes profane twist. My goal is to inspire others not to give up on life or anything else, and to understand that it’s actually possible to enjoy any experience, even battling a life-threatening illness (or two).

14 thoughts on “Cha Cha Cha Chia

  1. We went to watch the Rock n Roll Marathon last year. Whitney’s boyfriend, Trey, ran it in her honor, and he did the Marathon in 4 hours 11 minutes. She is coming upon her 2nd year of remission, May 22, also her birthday. We are so Thankful for her health and I think of you and say prayers for you every day. I think of your mother too, and how painful it has to have been to have you so sick. But it is all looking so much brighter for you. Thank God you are headed in the right direction. What an honor to have your very good friend commit herself to this endeavor. Keep feeling better and better!!!

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  2. i am sure this journey has not necessarily included “delight” as a thought, but i can’t tell you how- well, maybe a better word is “enlightening” it is to receive your updates! i hope you know that when this is all over you are going to be so busy traveling to sign autographs of your new book “FCKNG AMAZING!” that you may need to save a few of your blue masks so people don’t recognize you!
    you are a true testament to the power of humor in healing!

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  3. I don’t know how you do it, but somehow it seems like you are having fun.
    I look forward to your updates and find myself laughing out loud. It’s then I realize what you are going through and you have brought humor to all of us.
    You are an inspiration and I can’t wait for you to have guests inside the bubble!
    Shannon Tarnutzer

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  4. Joselyn: Whatever you do, Sweetheart, just keep up the happy results and the joy at being able to be freerer each day to get out there and live once again. I am so proud of you and I am thrilled you can enjoy the beautiful things you are describing here. So worrisome that here you are recovering from this most momenteous trial and your Dad is in so much pain and now he is struggling.. Life is for the tough ones to get through and he is tough and brave as you … He will pull through…but it is rare that LFPIII is down for long. Bless him and your Mom…. Love to Toady! Auntie C

    Date: Fri, 12 Apr 2013 02:29:21 +0000 To: charlotte_mayfield@hotmail.com

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  5. Joselyn,
    I love seeing your name in my inbox as I know I will laugh, get inspired and remember how lucky I am to know such an amazing spirit!
    So glad you are expanding your horizons and getting back out of the bubble – you have been missed!
    Keep shrinking those football sized feet and Happy 50th!
    love,
    erin meyer

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  6. I think the gold earrings were just the right statement to the new born baby bald head you got going on. YOU really were born again!! New blood marrow, new hair…Ok the bread dough feet are not so cool but even you can rock the Wilma Flintstone white shoe look! Embrace it, girl. If you can’t hide it …decorate it!!

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  7. Jos,

    I hope that the new meds help and geez I am so sorry about another side effect! It is so great to hear that you visited Mychaela and had tea with your mom and Mychaela at Pelican Hill. We are praying and love you!

    Xoxo Gretchen and Dick

    Gretchen Miller
    Transtar Commercial Real Estate Services
    DRE# 01071427
    http://www.transtar.com
    949-760-4013 work
    949-813-6122 cell
    888-717-2563 fax

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    1. Jos
      You “f”rock and yes that’s with rock with an “f”! Love chia pets (although I have never had one) and your new hair! It will grow in thick in beautiful in due time my friend and you’ll be sporting your cute braids again soon!
      Chia and Jos…who would have ever thunk it.
      Xoxo, jae enfu

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  8. Joselyn, great growth! Sending lots of encouragement for the daily step towards recovery. So happy to hear about your progress! Let us know when you might venture our way. S3

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  9. Jos, Seeing you on Friday night made our family B-day dinner the most memorable evening.ever You have faced this challenge head-on with grace, strength, courage and yes HUMOR. I love you to “The Moon and Back” I couldn’t be more proud. Love you, Jennifer, Chanel, TRent, Weston and Savannah ….xoxoxoxo

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  10. Jos it was so fabulously amazing to see you Friday night!!! You look absolutely BEAUTIFUL!!! Can’t wait till I can give you a big hug. Love you so much!!

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