My Graft vs. Host symptoms were getting worse, so Todd urged me to email Dr. F to alert him. I was not scheduled to see him for another 10 days, but he emailed back immediately and told me to come in the next day and he would squeeze me in. So, back up to COH we went. I had AFBT – Another F-ing Blood Test in the main lab, then headed over to see Dr. F. During our last visit, we presented him with his very own F-bomb (see post “100 Days ~ Look Mom, No Mask”). He was thrilled, because we now freely toss F-bombs around the exam room, which makes me feel right at home 🙂 He brought in Dr. J (not the hoops player), but a dermatologist with lots of experience with Graft vs. Host. She was great (doctor #18 for me), and was confident that I would get through this setback. My blood counts are now holding steady in normal ranges and Dr. F reassured me that my graft of Leason’s marrow is very strong! They both checked me out and determined that I needed more meds to get this GvH thing under control.
My facial rash has become more hideous and red and my lips are more painful, due to an increase in lesions on the inner ridge. Smiling, speaking and eating are quite painful these days. I was given a prescription cream for my face and a prescription ointment for my lips. I now have a sh*t ton of meds I take per day, as compared to just a sh*t load I was previously taking. Big difference. It seems I am popping pills, swishing solutions or applying creams/ointments all day long. I am so fortunate that my symptoms are very minimal compared with some of my fellow COH patients and online AA and GvH group members. Some of them have been hit really hard with GvH, like major infections and blindness. Some need a second transplant. I continue to be blessed!
I have been wearing a bunch of good luck charms around my neck ever since I entered the hospital for my second stay (transplant). From my parents: a boy/girl charm, representing Leason and myself; a wishbone; an evil eye, to ward off bad luck; and a guardian angel. From Mychaela: a “fearless” bar and a lucky horseshoe. After my transplant, Mary added a “BMT Survivor/One Tough Chick” circle of life. I believe they have helped bring me safely through this experience, and I don’t know if I’ll ever take them off!
I continue to make trips out into the real world, including another matinee with Todd – The Internship. I give it a B-. I give our lunch at R & D Café an A 🙂 I’ve been out to lunch with several friends as well, and I’m loving getting out with them! Yesterday, we took Rex to LAX for his flight to London, where he will join the Semester at Sea Summer ’13 voyage. Todd was very concerned that I was mingling with the great unwashed in the Bradley International Terminal, so we basically ran out of there after a tearful goodbye at the security line. Two nights ago, we had a casual Bon Voyage with Rex at Sushi Laguna, and I had my first raw fish in a year. I ripped open a few tender spots on my lips to open up wide enough for the Maui Roll, but it was totally worth it! Yum yum in my tum!!!
OK, so THSIOOC – The Hair Situation Is Out Of Control. We’re talking not even close to the Bad Ass scoreboard. What ever this is on top of my head doesn’t even register a 0 on the scoreboard. I went from straight, fine “brown” locks to chemo bald to a runaway train bound for the disastrous fro look of a 76+ year old lady who has basically thrown in the hairdo towel and said WTF – I don’t give a sh*t anymore. I purposely wrote 76, because my mom is 75 and definitely NOT in this category – she’s a hottie 🙂 I don’t actually know any ladies who fit this description (and NONE of my readers fall into this category), but I’ve seen some around, and I want no part of it. So, I’ve made an emergency appointment with my hair expert, who I’ve known and trusted for over 25 years, to save the day and slam on the fro freight train brakes. I’m getting a little bored with my hat collection. I’ll keep you posted on the magic he works on my head.
Today is Father’s Day, and the three most important dads in my life could not be more precious to me. My dad, Leason Pomeroy III has taught me that I can laugh in any situation. Side by side, we have been battling various health issues, and we’ve been kicking a sh*t ton of major ass! My husband, Todd is the most amazing father my kids could ever wish for, and he has been the most dedicated care taker anyone could ever ask for, going way beyond what any other care taker has ever done! Appointments, prescriptions, correspondence, driving, keeping the stress level very low, cooking, shopping and emotional support are out of this world! My brother, Leason Pomeroy IV literally saved my life by donating his bone marrow. He is a fantastic father to Andie and Leason V. He and Kesha are raising two incredibly smart, well adjusted, talented kids. I wish them and all the great dads out there a very happy Father’s Day!
F-bombs heard ’round the world :