Christmas came early for me this year! I must have been a very good girl, because I got the best toy of all – a PICC line! I know you’re all jealous as hell. This device allows me to avoid the countless pokes my condition brings with it. It’s a long-term port that has 2 […]
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We finally heard from Dr. P with my latest bone marrow biopsy results. It was not good news. I have severe Aplastic Anemia, which means my bone marrow has failed. Once again, I’ve been given a rare diagnosis, with approximately 2 to 3 Americans in every 1,000,000 having received it. WHAT??? I was always told […]
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My Over-The-Top Loving Family – BAD ASS in the most awe-inspiring way Having 12 Doctors Working to Heal Me – BAD ASS in the most stellar way Waking Up to the Joys of the Newest Prednisone Side Effect: Mouth Ulcers Covering the Inside of My Cheeks – BLOWS in the most f-ed up, merciless way […]
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Wednesday I went to Dr. G’s (neurologist) office for another MRI to check the inflammation of my muscle fascia. Literally 2 seconds after getting dressed, I was called back in for a second 45-minute session in the tube, this time with dye. UGG! I mean FUGG! The results showed that the inflammation that was huge […]
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After a relaxo Sunday, I woke up on Labor Day Monday with the chills – exactly what my new doc, Dr. P, of City of Hope told us was the worst possible thing for me at this time. We headed to the Hoag Cancer Center for AFBT (Another F-ing Blood Test) and possible transfusions early […]
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HOPE – (Have Only Positive Expectations) Friday was the best day in a long time. We drove up to City of Hope in Duarte, where my Newport team of docs decided I need to be at this point. Didn’t really know where the hell Duarte was previously, but we now have the route memorized and […]
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Before I ever had a transfusion, I thought of them as scary, critical and dangerous. I never EVER thought I would need one. At this point, I’ve had 14 of them, and I now equate a transfusion to a chill sesh – relaxing in a lounge chair, reading, watching TV or a movie, and visiting […]
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I’m the luckiest person in the world because my army of supportive family and friends is THE BEST medicine! Online shopping is the second best medicine. Blasting Tom Petty and Donavon Frankenreiter is the third best medicine. It’s a love/hate relationship with platelets, red blood cells and white blood cells. Trojan football is going to […]
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So, I’m staring at this ever-growing mass of pill bottles and ever-expanding list of procedures, and I’m starting to wonder about all of the combined potential side effects I may have the pleasure of experiencing due to all this sh*t I’m exposing my body to. Don’t be alarmed, I won’t list all 2,361 here, just […]
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I want to sincerely thank everyone from the bottom of my heart for the kind compliments on the beauty of my esophagus! It means so much to me! (I also just like saying the word esophagus.) I thoroughly enjoyed a very luxurious weekend at home and not at my HAFH (Hoag Away From Home)! It’s […]
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JOSELYN'S BRAWL 