Don’t Hate Me Because My Esophagus is Beautiful

I want to sincerely thank everyone from the bottom of my heart for the kind compliments on the beauty of my esophagus!  It means so much to me!  (I also just like saying the word esophagus.)

I thoroughly enjoyed a very luxurious weekend at home and not at my HAFH (Hoag Away From Home)!  It’s been quite a long time since I have not spent a chunk of my weekend at the Hoag Cancer Center, and I loved every minute of it.  My peaceful time abruptly ended Monday morning, however, with AFBT (Another F-ing Blood Test) at Dr. S1’s office.  It appears my platelets might be improving slightly, since they are holding a little more ground than usual 3 days after a transfusion.  We are not getting too excited yet, because the little suckers have played  this game before…  My white cells are looking really low, so Dr. S1 has started me on Neupogen injections every other day until my bone marrow cooperates in making more.  I am also starting a new drug, because INPEP (I’m Not Popping Enough Pills).  My team is very hopeful the Cyclosporine will improve all of my blood problems.  This will bring my total pills per day to 16, which are taken during 7 specific popping sessions throughout the day and night.  I have a pretty chart that is my guide as to when to take what.  My docs and nurses have warned me that I may experience some bone pain with the Neupogen shots, so if you hear any screaming, don’t be alarmed.

OK, so who put the stick of butter under my skin where ILLFRMT (It Looks Like Frankenstein Ravaged My Thigh)???  It is still soooo swollen almost 6 weeks post surgery that there is concern.  I will be visiting my surgeon, Dr. S2 this week to see what needs to be done.  Sounds like another fun procedure is on the horizon 🙂

Classy Pill Popping

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I am a survivor of two extremely rare diseases, thanks to over 100 blood transfusions and ultimately, a bone marrow transplant. My blog, joselynsbrawl.com, chronicles my adventures through medical offices, operating rooms, clinics, transfusion centers, hospital transplant floors, victory celebrations, and finally my bucket list items – all with a humorous and sometimes profane twist. My goal is to inspire others not to give up on life or anything else, and to understand that it’s actually possible to enjoy any experience, even battling a life-threatening illness (or two).

11 thoughts on “Don’t Hate Me Because My Esophagus is Beautiful

  1. You should be a comedian! You are amazing with what you are going through and your awesome sense of humor. We are praying and thanks for the update!! Xoxo The Millers

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  2. Joselyn – I heard about your blog while on the beach this weekend. Of course, there were rave reviews from everyone! Honestly, your writing style is very witty especially considering with what you are dealing (I just can’t end a sentence in a preposition). My positive thoughts and prayers are with you. You have helped so many others over the years that it is time for you to be rewarded (karma reference). Glad to hear of some improvement in the platletts area. Get well soon (that’s an order !) Scott

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  3. Dear Jocelyn–JoJo just told me today what troubles you’re having, and how brave and courageous you are about the whole thing. Since your fighting spirit is at work, I’m betting that you will lick this thing, like the one in a million kid that your are. Much love,

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  4. I I love the cake pedestal platter for your myriad of drugs. Very classy. Must be a Martha Stewart PPPP (pill popping presentation Platter). My prayers are with you and I think about you daily. Keep your spirits up and keep blawging! Love it.
    Karen Kushner

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