After 43 hellish days and nights, I was released from the City of Hope’s Helford Hospital last week. I left my “bubble” twice during that time, once for a CT scan and once for a bronchoscopy (I started my stay with a lung infection/pneumonia, so they ran a tube down into my lung to check […]
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There is no way to properly thank everyone who has reached out to me with encouragement. First, I want to thank Todd and my parents for being here every single day, and Leason, Mychaela and Rex when they are able. So many of you have volunteered to drive up and visit, although my docs […]
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My Thundering Herd that keeps the HOPE alive for an ATG cure So, I’ve been chillin’ in my germ-free bubble for over 3 weeks now, trying to dodge any and all possible body invaders such as lung pneumonia infections, liver infections, kidney infections, low pulse rate, eye irritations, high glycemia, high blood pressure, nausea, low […]
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We’ve received some good news 🙂 The pneumonia infection in my lung has gotten smaller, according to a follow-up X-ray. It appears to be fungal, not bacterial, which makes it more difficult to off, but I’m being pumped with endless IV antibiotics and anti-fungals round the clock. I will have a follow up CT scan […]
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So after gearing up for a horrific 4 days of shaking, baking, barfing and feeling sh*tty, I am stoked and thrilled that I am not having much of a reaction to the ATG horse antibody infusions. They have given me lots of great pre-meds to help ward off any of the nausea problems. They are […]
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Christmas came early for me this year! I must have been a very good girl, because I got the best toy of all – a PICC line! I know you’re all jealous as hell. This device allows me to avoid the countless pokes my condition brings with it. It’s a long-term port that has 2 […]
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We finally heard from Dr. P with my latest bone marrow biopsy results. It was not good news. I have severe Aplastic Anemia, which means my bone marrow has failed. Once again, I’ve been given a rare diagnosis, with approximately 2 to 3 Americans in every 1,000,000 having received it. WHAT??? I was always told […]
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My Over-The-Top Loving Family – BAD ASS in the most awe-inspiring way Having 12 Doctors Working to Heal Me – BAD ASS in the most stellar way Waking Up to the Joys of the Newest Prednisone Side Effect: Mouth Ulcers Covering the Inside of My Cheeks – BLOWS in the most f-ed up, merciless way […]
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Wednesday I went to Dr. G’s (neurologist) office for another MRI to check the inflammation of my muscle fascia. Literally 2 seconds after getting dressed, I was called back in for a second 45-minute session in the tube, this time with dye. UGG! I mean FUGG! The results showed that the inflammation that was huge […]
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After a relaxo Sunday, I woke up on Labor Day Monday with the chills – exactly what my new doc, Dr. P, of City of Hope told us was the worst possible thing for me at this time. We headed to the Hoag Cancer Center for AFBT (Another F-ing Blood Test) and possible transfusions early […]
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JOSELYN'S BRAWL 