We’ve received some good news 🙂 The pneumonia infection in my lung has gotten smaller, according to a follow-up X-ray. It appears to be fungal, not bacterial, which makes it more difficult to off, but I’m being pumped with endless IV antibiotics and anti-fungals round the clock. I will have a follow up CT scan next Thursday so my docs can take a closer look at what’s crashin’ the healthy lung party. After having nurses bolting into the Bubble in a panic as I “sleep” because my heart rate drops to less than 35 beats per minute, followed by off the charts high blood pressure numbers, all of which was recorded on a heart monitor that I wore for 24 hours, I was super duper nervous for my meeting with Dr. Y (cardiologist). He told me that the abnormal numbers I was posting were likely due to all the medications I’m on, and being that I have no other symptoms, he’s decided NOT to uproot me from the Bubble (yes!) and to basically say sayonara to the heart complication snag (double yes!). So, now we are waiting and hoping on the bad ass horse serum, which will probably take a few weeks to see any positive results on my blood counts, if any. If those results don’t come, we’ll move on to a bone marrow transplant. My heroic brother, Leason, was tested yesterday at COH to see if he is a match for me. Dr. P expects I will be chillin’ in the Bubble for the next 3 weeks, so I can remain in a sterile environment, be close to medical personnel if I react adversely to the ATG Equine Globulin (which can happen 3 weeks after infusion), and to pulverize the bunk in my lung.
…and now for the BIG QUIZ – Use a #2 pencil only and good luck!
Keep in mind that the quizmaster thinks the letter F is neato 🙂
1. Eosinophilic Fasciitis
k) is code for: you’ve got a trig midterm tomorrow and you’re being chased by Guido, the killer pimp.
f) is a disease that BLOWS!
2. Neupogen
f) hurts like a Mo Fo and is not for pussies.
b) is the captivating, brand spankin’ new glittery boy band to dominate the tween scene in Topeka.
3. ATG treatment
f) usually causes the patient to “shake and bake” through horrendous fevers, but with the help of the shiznit docs and nurses at COH, and their special pre-meds, it can be crushed with little discomfort.
h) Ass to Grass ~ a type of squat in weightlifting where one goes as deep as possible.
4. Prednisone
f) is a nasty ass BITCH
r) is a quick, easy, inexpensive and painless alternative to a facelift ~ gives you flawless skin, and a beautiful angled face within the first few doses!
5. The EMG Test measures
a) elephant mating gestures
f) electric activity in the muscles and nerves
6. Some possible side effects of Cyclosporine include:
f) acne, loss of consciousness, vomit that looks like coffee grounds, confusion – I highly recommend it!
y) an uncontrollable urge to play tummy sticks
7. Duarte can be found
n) in the deepest reaches of Fat Bastard’s navel
f) at the base of the San Gabriel Mountains, between Arcadia and Glendora, CA. Musician Glenn Miller once made his home in Duarte. Don’t think he actually MADE his home by engaging in framing, masonry or plumbing, but he lived there.
8. A PICC Line
f) is a fan f-ing tastic toy for all wanting to avoid needles being plunged into their veins multiple times a day.
b) is a high voltage, razor wire barrier that completely surrounds and protects the world’s second largest ball of string from would-be heisters.
9. Platelets
f) are responsible for clotting blood. Quite nifty if you are, say, a knife juggler or like to run with scissors.
d) are like cute little adorable tiny baby plates, some call them saucers and serve like Cheese Whiz and mini marshmallows on them, some even have like unicorns on them!
10. The Bubble
j) is a prelude to a fart ~ the sound of gas traveling through your lower intestine before exiting triumphantly through your ass.
f) is my sterile, negative pressure world for about the next 3 weeks. Rent includes a private vestibule for suiting up in gloves, masks and gowns, a large heard of inspirational miniature horses, a Tom Petty poster, a I heart Joselyn sign from Todd, special photos, silk peonies, 24 hour room service for food and drugs, a view of the San Gabriel Mountains, 4 IV pumps, built-in vital machines, a bathroom, and a bed that can weigh me, measure my heart rate, and notify the nurses when I try to make a break for it.
Sunrise from the Bubble
Answer Key: 1) f, 2) f, 3) f, 4) f, 5) f, 6) f, 7) f, 8) f, 9) f, 10) f
JOSELYN'S BRAWL 
Hi Darling:
I’m hoping you have a good result from your CT scan today. Thanks for keeping your good humor, it keeps us all sane! You are wonderfully brave, inspirational, talented and basically just a good egg of a human being!! Wishing you the next week full of good news, loads and loads of love, Rosemary & Bill
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Sending you our love and prayers, Kirsten and family
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I appreciate you having such a wonderful spin on all that you are going through. Always remember, you have no better and loving friends like the insulated circle of closest intimates that are sharing this with you right now. We have your back, darling one and NEVER, EVER forget that. O.K. Jos? We love you so much and are just smothering you with prayers, thoughts and affection at this time. Get well soon.
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How do you do it? I hope your blog is as therapeutic for you as it is for us. You we were always such an inspiration and you remain one even with everything you are facing. Keep it up!!! We love you and are praying for you!
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So glad to receive Marlenes update and read about small victories! grab on to them and they will propel you forward!
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Joselyn,
Thinking about you, sending love. I hope you can feel it. So much love coming your way from so many. XOXOXOXOXOXOXOXOXOXOXOXOXOXOXOXOXO
Mary
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Jos,
I thought the answer to question # 2 was the glittery boy band, but hurts like a Mo Fo probably applies to most of these treatments! While you have been in Duarte, a new sensation has hit the charts – Gangnam Style! I’ve been working on my dance moves to show you soon when you can see more visitors. Maybe Todd can show you some of his You Tube videos…
Best wishes to you as you continue to battle these health issues with amazing determination and humor!
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JOSELYN,
I hope your test results are going in the right direction. You are one tough cookie. I miss you and love you. XOXOXO Mary
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Went to see a 49 ur old friend who has a 7 month old little boy. He’s very adorable and very good. I hope u are feeing strong!
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Power To The Platelets! (fist raised)
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First of all, hope you are doing well jos..we are sending love and hugs your way!!!
Secondly, I was thinking of you and decided to reread your last blog entry…just now realized that all the answers were f!!! Thanks for helping out a bruin just in case 😉 Also, you should tag the term ATG before 2016…could be a favorite amongst the weightlifting commentators!!!
You continue to be an inspiration and make us laugh/smile through this challenging time. Keep staying strong…We love you!
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Hi Sweetheart, Visiting my precious papa upstate. The entire Hannon Family send their best wishes for a rapid recovery…Missing you from afar! Auntie M & The Town of Ft Mill, SC!!!
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I so enjoy your blog as much as it pains me to read it…it truly reveals your fighting spirit!!! My thoughts and prayers are with you always. Love, Barbara
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Hoping your feeling better each day!
I mentioned that I went to visit a friend over the weekend. I left my dog at a kennel where the dogs are free in the home and yard. Rose, my dog, is very sweet and gentle. She doesn’t bark and is shy. When we picked her up the lady told us how Rose was the ring leader of all the small dogs and barked to keep the others in line! They said she has a different personality. Still sweet but in charge! Funny!
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…Hi Jos…hope you are staying cool in your bubble tent…..SO hot and stifling today in L.A. .. Good night now….rest well…
Silvia
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Joselyn, hoping you are feeling better. Thinking about you everyday and checking your website for updates. Heard through the grapevine that your brother is a bone marrow match. Stoked about that! Not sure if its true but I’m going with it!! Know for sure that everyone at COH is taking great care of you. Sending you, Todd, Mychaela and Rex lots of love and positive energy from the Flynn Family ❤
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How are u feeling? You r in my prayers always! Guess what I did? I was rushing trying to get my work done before my dinner and I backed up in my wheelchair and ran over the IPad! I cried. It broke. Half the screen is black. It works enough to slowly type you now that I know it’s quirks!
But there is not much hope I’ll have to get a new one. I depend on it too much!
Enough about that. Hope things are progressing for you!Stay strong!
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Holding you in the Light! Courage in the dictionary has been redefined to simply say, JOSELYN!!! XO
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My prayers go out to you and your family
And the candidates!
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How’s the horse woman today? We should make you a new action hero! I watched the debate and was surprisingly pleased with it! At least it wasn’t too one-sided. It’s still a race! I pray for u and your family daily!
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Jos, We are all thinking about you and can imagine that the only reason you haven’t posted any updates is because you are feeling mighty poorly. I hope you can feel all the love coming your way. Sending hugs and kisses and chicken soup when you can have some. XOXOXO Love, Mary
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(Tried to post a minute ago but got lost in the Ethernet!)
Hi Joselyn:
Was in Cville last week – for prep for the Spring Voyage. Looking forward to you beating the current f*ing hurdles and rallying to join us – Maybe Capetown? You will be an inspiration to the entrepreneurs on board with the Unreasonable Institute who are working on doing good around the globe.
Thinking of you every day.
Fondly,
Karen
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Hello Missy Jocelyn,
Just heard over drinks in Laguna. When we look into the dictionary for class act your picture is there. “ Hold on just a little bit tighter now baby”
Warmly,
Diane Cannon
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Hi I took the quiz again , my 4 th timer I’m getting better just like you!
Did you see the SC game? Don’t know what to say! I wish it could have been a blow out. Maybe next time’
Got an update from your Mom today” grab on to each victory! All the small steps add up and keep you sane and moving forward and.positive’, you are in my prayers’
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Jos,
Been thinking about you daily and hoping that you didn’t jinx yourself when you said the shake and bake thing is a non-event. Hoping we haven’t heard from you because you’re feeling so well that you have been dancing in the bubble non-stop! (Another side effect from prednisone, but at least a good one) And not because you are feeling, as Mary says, “mighty poorly”. Sending electronic hugs your way and hoping to chuckle to another one of your posts soon~XOXOXOXOXOXOXO
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Hello Joselyn: This is Donna Friedman, I know the boys have been circulating their well wishes but I wanted you to know that we are really praying for you and sending good wishes your way everyday! You are a trooper girlie. Your posts have made me grin even if they are not global! I woke up and thought of you and could not let the day go by without letting you know that you are loved and thought of soo much! I am hoping you have a good day today, will write again soon.
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.Thinking about you daily…. Praying and sending my love to you…… And your amazing family… Stay strong jos… Your loved and adored …. Xoxo Karen
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