Home at Last! (Again)

I was so beyond elated to be back home on Monday night after spending 90 of the last 130 days in the hospital!  I couldn’t have made it through without the unrelenting support of my family and friends!  Special thanks to Todd, my mom and dad for driving up to City of Hope EVERY day […]

Read More

Transplant

I apologize for taking an exorbitant amount of time to get another post up, but I have been feeling rather sh*tty as of late. I am sitting here in a slightly morphine induced haze, trying to update you on the previous 5 weeks of my life. Here goes nothing:  On December 3rd, a couple of […]

Read More

We Have a Plan

So, we have a plan.  I will check into City of Hope on December 7 to begin my bone marrow transplant festivities.  On the morning of the 7th I will receive a Hickman catheter, which is wider gauged than the PICC line I now have in my left arm.  I guess marrow is thicker than […]

Read More

What an Honor!

I was so honored to have Coach Lance Stewart and the Laguna Beach Varsity Girls Volleyball Team dedicate their post season to me!  I couldn’t believe it!  They added ‘JM’ to their jerseys and signs were distributed to the crowd.  I was so disappointed that I couldn’t attend and watch the matches, but Todd and […]

Read More

Home At Last!

After 43 hellish days and nights, I was released from the City of Hope’s Helford Hospital last week.  I left my “bubble” twice during that time, once for a CT scan and once for a bronchoscopy (I started my stay with a lung infection/pneumonia, so they ran a tube down into my lung to check […]

Read More

Big Thanks from the Bubble

There is no way to properly thank everyone who has reached out to me with encouragement.   First, I want to thank Todd and my parents for being here every single day, and Leason, Mychaela and Rex when they are able. So many of you have volunteered to drive up and visit, although my docs […]

Read More

My Hero

My Thundering Herd that keeps the HOPE alive for an ATG cure So, I’ve been chillin’ in my germ-free bubble for over 3 weeks now, trying to dodge any and all possible body invaders such as lung pneumonia infections, liver infections, kidney infections, low pulse rate, eye irritations, high glycemia, high blood pressure, nausea, low […]

Read More

Game On – Equine Style

We finally heard from Dr. P with my latest bone marrow biopsy results.  It was not good news.  I have severe Aplastic Anemia, which means my bone marrow has failed.  Once again, I’ve been given a rare diagnosis, with approximately 2 to 3 Americans in every 1,000,000 having received it.  WHAT??? I was always told […]

Read More

Bad Ass or Blows?

My Over-The-Top Loving Family – BAD ASS in the most awe-inspiring way Having 12 Doctors Working to Heal Me – BAD ASS in the most stellar way Waking Up to the Joys of the Newest Prednisone Side Effect:  Mouth Ulcers Covering the Inside of My Cheeks – BLOWS in the most f-ed up, merciless way […]

Read More

Marrow, Moon Walking and Mid-day Mexi Magic

Wednesday I went to Dr. G’s (neurologist) office for another MRI to check the inflammation of my muscle fascia.  Literally 2 seconds after getting dressed, I was called back in for a second 45-minute session in the tube, this time with dye.  UGG!  I mean FUGG! The results showed that the inflammation that was huge […]

Read More