Guest Blogger – My Lifesaving Donor Son, Rex

You must be sooooo sick of me blah blah blah-ing all the time, so I thought you would greatly appreciate (I know, right?  She never shuts up) hearing from someone else who has had experience with the transplant world.  It’s about time for some new blood! Rex writes from the perspective of a stem cell donor. […]

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We Have a Plan

So, we have a plan.  I will check into City of Hope on December 7 to begin my bone marrow transplant festivities.  On the morning of the 7th I will receive a Hickman catheter, which is wider gauged than the PICC line I now have in my left arm.  I guess marrow is thicker than […]

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Pop Quiz

We’ve received some good news 🙂  The pneumonia infection in my lung has gotten smaller, according to a follow-up X-ray.  It appears to be fungal, not bacterial, which makes it more difficult to off, but I’m being pumped with endless IV antibiotics and anti-fungals round the clock.  I will have a follow up CT scan […]

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Bad Ass or Blows?

My Over-The-Top Loving Family – BAD ASS in the most awe-inspiring way Having 12 Doctors Working to Heal Me – BAD ASS in the most stellar way Waking Up to the Joys of the Newest Prednisone Side Effect:  Mouth Ulcers Covering the Inside of My Cheeks – BLOWS in the most f-ed up, merciless way […]

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Transfusion Fun 101

Before I ever had a transfusion, I thought of them as scary, critical and dangerous.  I never EVER thought I would need one.  At this point, I’ve had 14 of them, and I now equate a transfusion to a chill sesh – relaxing in a lounge chair, reading, watching TV or a movie, and visiting […]

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What Cide Effectz?

So, I’m staring at this ever-growing mass of pill bottles and ever-expanding list of procedures, and I’m starting to wonder about all of the combined potential side effects I may have the pleasure of experiencing due to all this sh*t I’m exposing my body to.  Don’t be alarmed, I won’t list all 2,361 here, just […]

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Don’t Hate Me Because My Esophagus is Beautiful

I want to sincerely thank everyone from the bottom of my heart for the kind compliments on the beauty of my esophagus!  It means so much to me!  (I also just like saying the word esophagus.) I thoroughly enjoyed a very luxurious weekend at home and not at my HAFH (Hoag Away From Home)!  It’s […]

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