Funnery with a Sharpie

Here’s some recent newsery and updates on my brawl:

Dr. Fantastic took me off Prednisone at my last appointmentation with him!  He had a great discriptivious way of announcing it 🙂  MNILTCCABB – Now Maybe I’ll Lose The Chipmunk Cheekery And Buddha Bellyness.

Dr. F
Dr. Fantastic

 

Chipmunk
Chipmunk Cheekery
Buddha
Buddha Bellyness

Last week, Todd and I took a little road trippage up the coast, which was the first vacay for me in a year and a half, if you don’t count my 2 extended stays at City of Hope Hospitalation.  We put 1,000 miles on the odometer and had a fantastical time.  The only mishap came when my chemo brain undercounted the amount of Tacrolimus I would need for 9 days.  We were in the little town of Cambria when we punched the f-ing panic button.  The Cambria Pharmacy studded out with superheroness!  Within one hour, they obtained insurance approvals, transferred my prescriptionery back and forth and filled a bottle with the magic tabs.

CA map
Californery Coastal Vacay
Rx
Rx for Joselyn “Chemo Brain” Miller

Of all 36 components that are tested when I get AFBT (Another F-ing Blood Test), Dr. F was only concerned about one this week:  low potassiumness.  To improve this shortage, he gave me a new prescription for going crazy with bananery.

bananas
Dr. F’s Rx for Low Potassium – Bananery

Todd recently told me what Dr. P (my doc up until and through my transplantage) had confided in him when it was confirmed that my brother, Leason, was a perfect match donor.  I had a 75% chance of surviving, so the odds were in my favoration 🙂

Pie Chart
I always preferred hugemongous pieces of pie 🙂

Not too long ago, I started a Facebook page to compliment this blogery:  Joselyn’s Brawl (there’s linkation right over there on the right sidage).  Through that page, many have signed up to be a potential hero bone marrow donor.  PLEASE go to www.bethematch.org and sign up – all it takes is a simple cheek swabbage.  Imagine the stokalicious feeling of saving the life of someone like me!

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I am a survivor of two extremely rare diseases, thanks to over 100 blood transfusions and ultimately, a bone marrow transplant. My blog, joselynsbrawl.com, chronicles my adventures through medical offices, operating rooms, clinics, transfusion centers, hospital transplant floors, victory celebrations, and finally my bucket list items – all with a humorous and sometimes profane twist. My goal is to inspire others not to give up on life or anything else, and to understand that it’s actually possible to enjoy any experience, even battling a life-threatening illness (or two).

40 thoughts on “Funnery with a Sharpie

    1. Dane – You have been right there with me every step of the way, and I can’t tell you how impressive that is to me! You are amazing to always let me know you care when you have SO many other things on your plate! You are a special guy, Dane! XO

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  1. Hey there Joselyn. I didnt know you were an artist also. Love the pics. Todd is now your chaufeur and nurse. Gotta love that vacay. Welcome home. I have passed through Cambria but now it gets big Pharma kudos. Always know that L4 is your hero but YOU are MY hero through all of this. Your atitude and courage increased your odds from 75% to 100%. Cant beat that! YANOUR (You are officially now un-roided) A status well deserved. Love, Bart

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  2. Always a great day when you can drop the ‘roids! Congratulations and here’s to you looking (and feeling) much more like yourself again very soon. Say so long to the Chipmunk Cheekery and Buddha Bellyness! YAY!

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  3. Hi Jos!
    LOVE the artwork and cool new ‘words’ and mostly feel privileged to be a friend!
    You’re encouragement personified!
    I couldn’t be happier for all of your hurdle jumping accomplishmentisms….(how’d I do)??
    Love you, Linda….and always, our Ry guy xoxoxo

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  4. Jos, glad you two made it home safe and sound. It was great talking to you on the road and to hear how much you were enjoying getting out of solitary between Laguna and COH. It is so nice to hear about your continuing improvement and to hear you talk about getting off of the roids and other meds rather than getting on. At last you have positive things to look forward to, like reconnecting with the MV Explorer, your floating second home, and more exotic travel. We are all so ecstatic about your recovery and remain amazed by your strength and fortitude. You remain our ultimate hero. That lion continues roaring in your heart. Lynn and Carolee

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    1. Lynn and Carolee – Your unwavering love and support has brought me through this thing since the very beginning, and I so appreciate you being there for me and for Todd! Your letters and posts are precious to me, as are you two! XO

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  5. Jos, I’ve loved every one of your blogs, but this is my favorite so far. I love it because I can tell how happy you and that the worst is truly behind you. I can’t tell you how much I admire you and how truly fabulicious you are! I just want to put my arms around you and thank you for your tenaciousness and for not buying that STUPID F-ING FARM! Love Ferro

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  6. So glad that you are going the right direction! It was great to see you Monday and hear about your big car adventure 🙂 Keep it up!!!

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  7. Jos,
    The humorness in your blogery continues to amaze. Your attitudage overflowest with awesomeness. Ditching the roids is a major milestonation. Hoorayage!!!
    XOXOXOXOXOXOXOXOXOXOXOXOXOXOXOXOXOXOXO

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    1. Mary Sue (I was going to write Mary Suage, but that didn’t sound right) – You have made this journeyation of mine more than tolerable, you’ve made it (kinda) fun! From the hysterical cards and notages, to the funny, always upbeat conversations, to your total unselfishative generosityness, you have literally been there EVERY day 🙂 You have a career in cheerleaderity if things go sideways in real estatery. Love you so much, XO

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  8. NO MORE ROIDS….that is fantastic news! Wish I could sign up and be a bone marrow donor but too much chemo in my bod…so NOT.
    So happy you had a wonderful trip…you deserve it more than anyone!
    ENFU my TTF! xoxo, jae

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  9. Roid Rage is sooooooo overrated anyway, right? What continues to confound however, is that you manage to still look your gorgeousity self despite Chipmunk Cheekery and Buddha Bellyness and furthermore confusingness is that you have maintained articulateosity beyond words (ha!) in defiance of chemo brain. I think we have all witnessed a miracleation! God Bless you and your family and all of your incredible friends that I feel I have gotten to know through Joselynamazingness. Love you so much!!!

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    1. Lucky Dan’s Mom – You are soooo cute with your wordery!!! Loved reading your postage 🙂 Thanks for the consistent support and cheerleading! Love you and the entire H familation! Love, love, love, Jos XOXO

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  10. Not only are you witty, wise and and have a wicked sense of humor, but you can doodle illustrate! Go bananas!!! xoxo

    Question? is there a weight requirement to donate marrow? I’ve never been able to give blood because of my size… I wonder if that goes with marrow as well?

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  11. Love the artage and the humor, as always. So thrilled to hear your life is getting back to normal. Missed you at nationals this year.

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    1. Lynn! Thanks so much for your constant encouragement and now banana recipes!!! I’ve just been downing them monkey style, but now I have a whole new world of bananery that’s opened up to me! Thank you, thank you!!! Love, Jos XO

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  12. We are all so thrilled for you Jos! We love you so much, and whenever I hear your favorite band Tom petty sing “I won’t Back Down,” I so think of you! “You can stand me up at the gates of hell, but I, won’t back down! You sure did, and you made it back!!!! Keep it up superwoman!
    Love from the Soylular Clan

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  13. In addition to your sharp wit and creative/fashion talents, you are also an illustrator! Wow, you continue to amaze and inspire through your journey towards complete recovery … think 100%! Many more travels and adventures for you!!!
    Xoxoxo

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  14. There lives a lady in Cali
    With talents too many to tally…
    Among her genius & skills
    She entertains us with stories and thrills…
    From slaying her personal health afflictions
    Sharing her fashion & sporting addictions…
    Joselyn Miller exudes inspiration & HOPE
    And her exuberant spirit keeps us stoked!
    GO GIRL! FIGHT ON! YOU’VE GOT THIS!!!
    …and our love & prayers always…M & J

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  15. hi Jos! i think you should develop some fabric using Dr. FANTASTIC’S image that you sketched. (It looks exactly like him!) And then create a dress pattern and sew yourself a DR. FANTASTIC DRESS!!! THAT would definitely be FANTASTIC!!!
    WITH LOTS AND LOTS OF LOVE TO MY HERO! XXXOO MOM

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