Here’s some recent newsery and updates on my brawl:
Dr. Fantastic took me off Prednisone at my last appointmentation with him! He had a great discriptivious way of announcing it 🙂 MNILTCCABB – Now Maybe I’ll Lose The Chipmunk Cheekery And Buddha Bellyness.



Last week, Todd and I took a little road trippage up the coast, which was the first vacay for me in a year and a half, if you don’t count my 2 extended stays at City of Hope Hospitalation. We put 1,000 miles on the odometer and had a fantastical time. The only mishap came when my chemo brain undercounted the amount of Tacrolimus I would need for 9 days. We were in the little town of Cambria when we punched the f-ing panic button. The Cambria Pharmacy studded out with superheroness! Within one hour, they obtained insurance approvals, transferred my prescriptionery back and forth and filled a bottle with the magic tabs.


Of all 36 components that are tested when I get AFBT (Another F-ing Blood Test), Dr. F was only concerned about one this week: low potassiumness. To improve this shortage, he gave me a new prescription for going crazy with bananery.

Todd recently told me what Dr. P (my doc up until and through my transplantage) had confided in him when it was confirmed that my brother, Leason, was a perfect match donor. I had a 75% chance of surviving, so the odds were in my favoration 🙂

Not too long ago, I started a Facebook page to compliment this blogery: Joselyn’s Brawl (there’s linkation right over there on the right sidage). Through that page, many have signed up to be a potential hero bone marrow donor. PLEASE go to www.bethematch.org and sign up – all it takes is a simple cheek swabbage. Imagine the stokalicious feeling of saving the life of someone like me!
Sounds like a great little road trip!
I signed up months ago!!
Keep Rocking On!!
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Dane – You have been right there with me every step of the way, and I can’t tell you how impressive that is to me! You are amazing to always let me know you care when you have SO many other things on your plate! You are a special guy, Dane! XO
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Jos,
This is such great news! We love you and are praying for you always!
Gretchen and Dick
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Gretch – You have been the SWEETEST friend through all of this! I can’t thank you enough for all the well wishes and prayers! It seems as though it all worked 🙂 Love you XO
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Hey there Joselyn. I didnt know you were an artist also. Love the pics. Todd is now your chaufeur and nurse. Gotta love that vacay. Welcome home. I have passed through Cambria but now it gets big Pharma kudos. Always know that L4 is your hero but YOU are MY hero through all of this. Your atitude and courage increased your odds from 75% to 100%. Cant beat that! YANOUR (You are officially now un-roided) A status well deserved. Love, Bart
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Bart – You win for most original and hilarious posts! Todd and I always savor your words 🙂 You are a rock star, and we’re talking heavy metal. XO
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Always a great day when you can drop the ‘roids! Congratulations and here’s to you looking (and feeling) much more like yourself again very soon. Say so long to the Chipmunk Cheekery and Buddha Bellyness! YAY!
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Barb – I know you have had a rough time of things as well, but yet you’ve managed to keep my spirits up along the way! Love you and miss you!
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Hi Jos!
LOVE the artwork and cool new ‘words’ and mostly feel privileged to be a friend!
You’re encouragement personified!
I couldn’t be happier for all of your hurdle jumping accomplishmentisms….(how’d I do)??
Love you, Linda….and always, our Ry guy xoxoxo
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Linda – Thanks for all the kind words of encouragementism 🙂 You rock and I can’t wait to sail with you once again!!! XO
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Jos, glad you two made it home safe and sound. It was great talking to you on the road and to hear how much you were enjoying getting out of solitary between Laguna and COH. It is so nice to hear about your continuing improvement and to hear you talk about getting off of the roids and other meds rather than getting on. At last you have positive things to look forward to, like reconnecting with the MV Explorer, your floating second home, and more exotic travel. We are all so ecstatic about your recovery and remain amazed by your strength and fortitude. You remain our ultimate hero. That lion continues roaring in your heart. Lynn and Carolee
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Lynn and Carolee – Your unwavering love and support has brought me through this thing since the very beginning, and I so appreciate you being there for me and for Todd! Your letters and posts are precious to me, as are you two! XO
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Jos, I’ve loved every one of your blogs, but this is my favorite so far. I love it because I can tell how happy you and that the worst is truly behind you. I can’t tell you how much I admire you and how truly fabulicious you are! I just want to put my arms around you and thank you for your tenaciousness and for not buying that STUPID F-ING FARM! Love Ferro
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Ferro – I’m glad I didn’t but that stupid f-ing farm as well 🙂 It needed too much sheet metal work! Thanks so much for the support! XO
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Jos, your depiction of DR. Fantastic is outstanding……………..
DAD
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Thanks, Dad! Lots of funnery drawing him 🙂 XO
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So glad that you are going the right direction! It was great to see you Monday and hear about your big car adventure 🙂 Keep it up!!!
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Thanks so much, K! Loved lunching with you and the old gang!!! XO
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Jos,
The humorness in your blogery continues to amaze. Your attitudage overflowest with awesomeness. Ditching the roids is a major milestonation. Hoorayage!!!
XOXOXOXOXOXOXOXOXOXOXOXOXOXOXOXOXOXOXO
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Mary Sue (I was going to write Mary Suage, but that didn’t sound right) – You have made this journeyation of mine more than tolerable, you’ve made it (kinda) fun! From the hysterical cards and notages, to the funny, always upbeat conversations, to your total unselfishative generosityness, you have literally been there EVERY day 🙂 You have a career in cheerleaderity if things go sideways in real estatery. Love you so much, XO
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NO MORE ROIDS….that is fantastic news! Wish I could sign up and be a bone marrow donor but too much chemo in my bod…so NOT.
So happy you had a wonderful trip…you deserve it more than anyone!
ENFU my TTF! xoxo, jae
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Hey Jae – I wish I could sign up as well… I would LOVE to be a donor! Thanks for the kind words and support through this ordeal 🙂 Love you! ENFU rtf XO
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Roid Rage is sooooooo overrated anyway, right? What continues to confound however, is that you manage to still look your gorgeousity self despite Chipmunk Cheekery and Buddha Bellyness and furthermore confusingness is that you have maintained articulateosity beyond words (ha!) in defiance of chemo brain. I think we have all witnessed a miracleation! God Bless you and your family and all of your incredible friends that I feel I have gotten to know through Joselynamazingness. Love you so much!!!
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Lucky Dan’s Mom – You are soooo cute with your wordery!!! Loved reading your postage 🙂 Thanks for the consistent support and cheerleading! Love you and the entire H familation! Love, love, love, Jos XOXO
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Not only are you witty, wise and and have a wicked sense of humor, but you can doodle illustrate! Go bananas!!! xoxo
Question? is there a weight requirement to donate marrow? I’ve never been able to give blood because of my size… I wonder if that goes with marrow as well?
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Nettie – You are in! As long as you’re 4’10” 🙂 Thanks so very much for considering joining the Be the Match Registry!!!
Awesome 🙂 XO
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Love the artage and the humor, as always. So thrilled to hear your life is getting back to normal. Missed you at nationals this year.
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Rich – Thanks for the kind words 🙂 I really missed seeing you and the boys at Nationals! Next year! XO
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Wow, from steroids to bananas! Yes!!!!!
http://www.chiquitabananas.com/Banana-Recipes/index-best-healthy-recipes.aspx
What great news Joselyn, and delivered in such hilarious and entertaining fashion of course! Thanks for keeping us all up to date on your amazing and inspiring adventure.
xo
Lynn
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Lynn! Thanks so much for your constant encouragement and now banana recipes!!! I’ve just been downing them monkey style, but now I have a whole new world of bananery that’s opened up to me! Thank you, thank you!!! Love, Jos XO
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We are all so thrilled for you Jos! We love you so much, and whenever I hear your favorite band Tom petty sing “I won’t Back Down,” I so think of you! “You can stand me up at the gates of hell, but I, won’t back down! You sure did, and you made it back!!!! Keep it up superwoman!
Love from the Soylular Clan
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Carolyn – Thanks for thinking of me when you hear TP!!! Thanks also for all the words of support and encouragement ~ I appreciate it so very much! Love to all the Soylulars! Jos XO
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I don’t recall any farm escrows
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In addition to your sharp wit and creative/fashion talents, you are also an illustrator! Wow, you continue to amaze and inspire through your journey towards complete recovery … think 100%! Many more travels and adventures for you!!!
Xoxoxo
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Chris – Thank you for the kind words and wishes! I greatly admire you and your ability to battle and emerge a beautiful victor!!!! XO
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There lives a lady in Cali
With talents too many to tally…
Among her genius & skills
She entertains us with stories and thrills…
From slaying her personal health afflictions
Sharing her fashion & sporting addictions…
Joselyn Miller exudes inspiration & HOPE
And her exuberant spirit keeps us stoked!
GO GIRL! FIGHT ON! YOU’VE GOT THIS!!!
…and our love & prayers always…M & J
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M & J – You are so incredibly thoughtful to write this awesome poem 🙂 Thanks so much for your love, prayers and everything else you have sent my way!!! Love you guys! XO
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hi Jos! i think you should develop some fabric using Dr. FANTASTIC’S image that you sketched. (It looks exactly like him!) And then create a dress pattern and sew yourself a DR. FANTASTIC DRESS!!! THAT would definitely be FANTASTIC!!!
WITH LOTS AND LOTS OF LOVE TO MY HERO! XXXOO MOM
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Great idea, Mom! Maybe I could also make some fabric with the chipmunk and Buddha images, because they look exactly like me 🙂
I love you so much! Jos XO
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what a great idea – and maybe you could sell it on FAB,com!!!!! xxoo mom
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