‘Twas a year since my transplant, when all through the home,
Not a thing was un “done”, not even the throne.
The tree was covered with meds, masks and gloves
As a gesture of thanks for the care from above.
To further celebrate hitting the one year mark, 10 members of my family decided to go somewhere really FUN!
Yes, back to the Magic Kingdom, the site where it all began: https://joselynsbrawlwithshulmanssyndrome.wordpress.com/2012/05/
It was a wonderful day of celebration, including rookie roller coaster rides for my niece, Andie, and my nephew Leason 5, who were balls-to-the-wall animals on Space Mountain and California Screamin’. I’m certain my meds (it couldn’t be my age, because I’m 1 year old now), caused me to feel like sh*t when my rocket returned to earth and my coaster stopped turning me and my tummy upside down. I didn’t let the urge to pukify the flower beds stop me ~ ! was stoked to be going on these rides just a short 12 months after the depths of brutalness.
We visited Tomorrowland Terrace, where in 1981 yours truly sold moon burgers, jupiter dogs and space mist. Nostalgic, but wasn’t missing the attractive hair net and orange polyester hat much. Not much at all. Ya, I wasn’t super enthralled with the uni on Grad Nights, when drunken high schoolers laughed at me while ordering space burgers with light mayo, no tomato, medium rare.
Then we were off to Tom Sawyer’s Island to visit Fort Wilderness, where Mom worked in 1956 selling Fritos and apple cider. We started our adventure at 9:30am and by 8:30pm, all but our 4 had crashed and burned and departed on the parking tram. I tried to persuade Todd and the kids to jump on the monorail to Fantasyland, but I was met with blank stares. If they had the strength to speak, I’m sure they would have said, “Are you f-ing serious?”
A couple of days ago, my outrageously supportive friend, Mary, asked me to go to lunch. She said that there might be a couple others. When I walked into Watermarc Restaurant in Laguna, what to my wondering eyes should appear, but 25 ladies that I hold SO dear! Mary had purple balloons, flowers, menus, and purple cupcakes, and as each friend got up to speak, I became more and more of a wonderfully appreciative bawling mess 🙂 I am truly the luckiest person I know to have such amazing, lovely friends! I was wearing my new fave ‘F’ sweater, and without asking, everyone knew exactly what it stood for 🙂
City of Hope is known for its ‘wish trees’ in front of the main entrance. My mom and I wrote wishes and attached them to one of the trees on a recent visit to COH. This year’s City of Hope Rose Parade float is going to have replica ‘wish trees’ filled with wishes from anyone who makes a donation and writes a wish on their special Rose Parade float page: http://www.cityofhope.org/roseparadefloat
My last visit to COH was a great one! I honestly enjoy my Duarte days… I get to visit with my friends on the welcome staff, the check-in staff, the appointment staff, the blood lab staff, and the clinic nurses and doctors. They are all WONDERFUL! As I sat in the blood drawing chair during my last visit, a young lady that I didn’t recognize approached me and said she was a student and asked if it would be alright if she “tried” to draw my blood. I said sure, and she began collecting the tubes and stuff she would need. Another phlebotomist that I know came over to supervise, and she reminded the student to apply the tourniquet and how to hold the needle. Everything went fine, and after she shakily filled the tubes, she thanked me and said I was her first draw 🙂 I looked at her name tag and said, “You rock, Sally!” She thanked me again for being the only patient who agreed to let her try. I am now on the every month plan! Yahoo 🙂 Dr. F said he will start slowly tapering my immune suppressants, one at a time after my January appointment. If I can keep the Graft vs. Host at bay, he’ll continue to taper until I’m at a level where he feels safe to give me my childhood vaccines. After I’m poked with those, I will be able to travel once again to the earth’s obscure corners 🙂 Can. Not. Wait. Merry Christmas to all and to all a good night – and a healthy, happy 2014!