More Platelets, a Pair of …oscopies and Move In Day

Due to the constant flow of requests for a glimpse of my esophagus, I am now thrilled to be able to provide you with this, a glimpse of my esophagus for your viewing pleasure. I met with Dr. M2 (gastroenterologist) to talk about having an upper endoscopy and a colonoscopy to try to solve the […]

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We’ve Got a Bleeder!

The adventure continues!  Just found out I’ve got internal bleeding 🙂  My team and I are hoping we can BIOTP, (Blame It On The Prednisone) and not something more serious.  To rule out the more serious, I had CT scans of my chest, abdomen and pelvis.  The procedure was not a big deal.  I just […]

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Punching the Frequent Transfusee Card

At this point , my platelets were hell bent on cliff diving, so I was being tested at least every other day.  What’s OMP (One More Poke) when your arms are already one massive bruised war zone?  There had been little effect, if any, from the Solumedrol infusions, so my team decided to put me […]

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Prednisone, Swearing, and the Olympics

Shulman’s Accessories are all the rage! Immediately following surgery, I started my Prednisone (steroid)  treatment in an attempt to get my muscles and blood counts to return to their former glory.  I continued seeing the docs on my team, averaging 2 appointments per day.  My platelets were still on a free fall, so I had […]

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Sushi, Champagne, Platelets, and a Scalpel

I DON’T HAVE CANCER!!!  My bone marrow biopsy came back clear!  Special Japanese dinner with VERY special champagne brought by my parents to celebrate the good news. Dr. G (neurologist) suspected Eosinophilic Fasciitis, and he ordered a full muscle biopsy to confirm his suspicions, so I met with my surgeon, Dr. S2 to go over […]

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WT(EF)?

Next up, a visit with Dr. G (neurologist), who had seen a few cases over his career that were somewhat similar to mine.  He checked me out and did an MRI on my thighs (because they were some of the most affected muscles) right there in his office.  The following day, I went to USC […]

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What IS this Exotic Disease?

Dr. C thought she heard a heart murmur, so she sent me to see Dr. B (cardiologist) and get an electrocardiogram.  Thankfully, that turned out to be a false alarm.  I saw Dr. H (rheumatologist), who checked me out and was not sure what to make of my symptoms.  I also saw Dr. M1 (infectious […]

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The Very Beginning with Poppins, Paella, and Petty

In early April, I went with my family to celebrate my 49th (!) birthday at Disneyland, which has become a tradition aimed at making me feel much younger than I actually am.  After a full day of charging hard through both California Adventure and the original park, we had dinner in Downtown Disney, and while […]

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