Inspiration

Yo!  Sorry for the delay since my last post.  I’ve been out and about living a “normal” life 🙂 Birthday parties, fundraisers, weddings, dinners, lunches, moving children into apartments, movies, family reunions, etc.  So grateful that I’m able to do all of it!  As I celebrate Day 250 Post-Transplant, I’ve been reflecting on the past […]

Read More

Miss MedAmerica Pageant

In my spare time I decided to play around a little with all my pill bottles… You probably already think I’m somewhat of a freak, but after watching this production, I’m certain you’ll think I’m a Super Freak 🙂  Grab some popcorn, Milk Duds, Jujubes, Raisinets, Junior Mints, Skittles, Dots, and/or M & M’s, sit […]

Read More

There Once Was a Girl from Nantucket

There once was a girl from Nantucket … Oh wait, scratch that – I think we all know where that’s headed 🙂 Ah hem… There once was a chick from Laguna Got the sniffles once in a blue moona. One morning she woke And without any provoke, Her muscles felt they’d been hit by a […]

Read More

It’s True… (what they say about blondes)

It’s true.  What they say about blondes.  It’s definitely true.  It’s enormously more fun, even with having to surrender a few IQ points.  (I have already slid down the scale with my chemo brain, so it’s a win-win) 🙂 Danny, my expert hair director for the past 25 years, recently worked a little magic on […]

Read More

Repulsive Rash, Loathsome Lips and Heinous Hair

My Graft vs. Host symptoms were getting worse, so Todd urged me to email Dr. F to alert him.  I was not scheduled to see him for another 10 days, but he emailed back immediately and told me to come in the next day and he would squeeze me in.  So, back up to COH […]

Read More

One Year, One Transplant, One For Sale Sign, One Arm

Today marks Day 172 post bone marrow transplant!  One year ago, I went to see my internist, Dr. C., for  “stiff muscles,” and she referred me to a rheumatologist, an infectious disease specialist and a neurologist within a week.  I had no idea what the next year would entail:  263 blood tests, 4 bone marrow […]

Read More

It Was the Best of Days, It Was the Worst of Days

Increasingly nauseas, developing big white sores on my gums, itching all over my entire bod, numb and painful feet, blistered lower lip, sore (streppy) throat. Todd emailed Dr. Fantastic on Sunday evening with these charming newest symptoms, and he immediately replied with, “Come in to see me tomorrow, I’ll squeeze you in.”  So yesterday I […]

Read More

#nomorePICCforthischick

So after 217 days, my trusty little PICC line finally came out of my body last week.  It served me well, especially for my 90 days in the hospital, sparing me needle pokes on several hundred occasions, both for transfusions and for blood draws.  It even delivered my brother’s life saving super duper bone marrow […]

Read More

Who Gives a Flying F*@k?

Who gives a flying f*@k?  I’ll tell you who gives a flying f*@k:  Marvin Drandell gives a flying f*@k, that’s who!  Marvin, Todd’s best buddy from grade school had a flying f*@k sent to me, and I couldn’t be more ecstatic with his kind and thoughtful gesture 🙂  Don’t you want someone to give a […]

Read More

Day 100: Look Mom ~ No Mask!

I really can’t believe it’s been 100 days since my transplant!  I still wake up at night, thinking I hear that damn vitals machine approaching.  I’ve been virtually cut off from the outside world for 7 months – no restaurants, no visitors, no leaving the house except to go see a doctor or check into […]

Read More