A Rare Call

I recently received a message from a woman who found me through a Google search, which pointed her to this blog.  Her sister has been diagnosed with eosinophilic fasciitis (Shulman’s Syndrome) AND aplastic anemia.  Those are the same extremely rare diseases that I was diagnosed with a few years ago.  I would venture to guess […]

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R.I.P. Gertrude

It is with much sorrow that I share the news of the loss of a dear friend.  Gertrude, my beloved yellow toe nail finally detached 12 weeks post crush fracture of my big toe. Sadly, she was the victim of a tragic accident when a heavy umbrella base fell on her at the end of July. […]

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Come On, Man!

Man Oh Man!  Boy Oh Boy!  I may not have the balls to post this.  Well, actually… I’ve just got to man up.  It’s mandatory I let the tomcat outta the bag.  No maneuvering around it.  Have you noticed any changes in my mannerisms?  I’ve got to carefully manage this manuscript.  I must not manipulate you any […]

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Guest Blogger – My Lifesaving Donor Son, Rex

You must be sooooo sick of me blah blah blah-ing all the time, so I thought you would greatly appreciate (I know, right?  She never shuts up) hearing from someone else who has had experience with the transplant world.  It’s about time for some new blood! Rex writes from the perspective of a stem cell donor. […]

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Shark Week Shoutout

Fairly obvi you come out of a bone marrow transplant a far cry from what you went in as, right?  I mean, duh, you have a whole new blood type and an additional DNA, which is your very own unique definition as a living being.  Add to that chemotherapy-induced menopause, and you’ve got the recipe for an unrecognizable selfdom.   […]

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Walking Across Amarrowca

You may remember from a previous post that my good friend, Jared Reichbaum, is making a documentary film inspired by my story and based on his amazing adventures. Well, he has just embarked on a truly remarkable adventure. Truly. Remarkable. So I’ll remark about it. Jared is walking across the United States of America. That’s […]

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YOLT

Wow!  I feel like a big loser poopy head for not writing my 60th post sooner.   I strongly dislike excuses, so I won’t give you one.  I’ll give you 3.  It’s exceedingly difficult to write when you’re:  1.  90 feet underwater 2:   flying towards earth at 120 mph and 3:  clinging to an ice wall […]

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