I recently received a message from a woman who found me through a Google search, which pointed her to this blog. Her sister has been diagnosed with eosinophilic fasciitis (Shulman’s Syndrome) AND aplastic anemia. Those are the same extremely rare diseases that I was diagnosed with a few years ago. I would venture to guess that we are two of an insanely small number of individuals that are members of the EF/AA club. Perhaps the sole members.
I messaged this woman back with my phone number and urged her sister to call me, if she wanted. Soon after, I received a call from my new friend, who is currently being treated for both diseases in the hospital. Chills surged through my body as she described her paths, treatments and experiences. It was as though she was describing mine. All the pain, pills, infusions, injections, biopsies, blood tests. It has not yet been determined if she will receive a bone marrow transplant, but her docs are considering the pros and cons. She is lovely and strong, but understandably scared. We connected on many levels, and I hope I helped her to believe there are so many reasons for hope, just as she helped me realize how far I’ve come.
We shared laughter and tears, and truly cemented a special bond. I know we will continue our conversations and grow our friendship as she proceeds along her path to a full recovery. I’ve been thinking of her constantly and hope my readers will join me in sending all their best wishes and prayers to my rare and special friend!