Solidarity is Solid

There have been several acts of solidarity that I wish to recognize because they are f-ing awesome!!!

First, my hubby, Todd, not only surprised me with a buzz cut the day after I had my head shaved, he also went for a big fat purple  “J” tat on his left deltoid!!!



Guy Kornblum, Kilimanjaro and Everest climbing partner, fellow SAS F’02 shipmate, and all around bff, also shaved his head in solidarity!


Brendan Geck, fellow SAS S’09 shipmate, decided to shave his head in front of all of our friends on the Jan. 2013 SAS Reunion Voyage.  He did it oh so appropriately on the Miller Court of the 7 Seas!

215682_10152432572700492_1321812212_n-1I want to thank you all for your kick ass support of me and my battle!!!  Sorry if I missed anyone!

I had my 2 of my favorite nurses at City of Hope come into my bubble for a sunrise shearing on about the 4th day after my chemo finished, because my hair was coming out by the fistful.  I couldn’t resist the urge to go with a mohawk, so I could feel kinda bad ass, just for a little while.  Maybe it was the fact that I had hit the morphine button a few too many times that morning…  It was the first mohawk they had done on a patient, and they wanted their work documented, so, here I am with my PIAB – Prednisone is a Bitch chipmunk face and mohawk, thanks to Sara and Roberta 🙂


I know the curiosity of my present hair sitch is killing some of you, so here I am in all my egghead glory – I don’t give a sh*t anymore.

I probably won’t see any growth for a few more months…  Until then, I’m rocking my beanie collection 🙂


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I am a survivor of two extremely rare diseases, thanks to over 100 blood transfusions and ultimately, a bone marrow transplant. My blog,, chronicles my adventures through medical offices, operating rooms, clinics, transfusion centers, hospital transplant floors, victory celebrations, and finally my bucket list items – all with a humorous and sometimes profane twist. My goal is to inspire others not to give up on life or anything else, and to understand that it’s actually possible to enjoy any experience, even battling a life-threatening illness (or two).

69 thoughts on “Solidarity is Solid

  1. I happen to think you are one of the most beautiful woman I know! Keep up your positive spirit as we get nearer to march 17! We love you Jos!


  2. I have just come across your blog and wanted to let you know your not alone. I got EF in 1995 and went through the ringer myself. Let me know if your interested in hearing about a fellow EFr’s battle….hopefully I could be of some help to you. I’ll just tell you now, your great attitude is phenomenal to see, and it will help you immensely!


  3. Jos, how can you be bald and still look so gorgeous? It’s disgusting!

    We are so happy you got a good report yesterday….that is the best news ever! We are thrilled for you. You really look terrific, Jos. Hang in there….you’re close to the finish line now! Say hello to Todd for us.

    We love you dearly,

    Aunt Wendy and Uncle John


  4. jos, LOVE the tat, LOVE the mohawk, LOVE how beautiful you look!

    Sooo looking forward to seeing you …your on your way….
    xo Patty and BIll


  5. Gorgeous,Gorgeous Girl! Your beauty inside and out is a fire, a spark, an encouragement to us all. Thanks for sharing your journey with us.
    Love to all,
    The Hollas


  6. …so glad to know you are home…I was at Operation School Bell last Saturday, giving away Global Grins toothbrushes to our kids….I am sending you their happy smiles…keep that spirit soaring high….xxoo Silvia Marjoram


  7. Hey Jos, so great to see you are home. I see the kingdom of Neptune finally caught up to you for the many times you’ve crossed the equator. You pull it off well. Keep your positive trend going. Sending lots of love from the east coast!
    -VR boys


  8. Jos!!! I love reading your blog and hearing about your progress. You have the best attitude EVER and then on top of that you do the whole mohawk thing?! bad. ass.

    you make the most of every opportunity… when you have had enough beanie days i’m sure you will be rocking the most fashionable funky wigs (and i so look forward to a post on your thoughts!) hot pink, 60s mod, beehive?
    : )

    sending smiles love and prayers your way!


  9. After the description of yourself I was not expecting you to look so beautiful!! God Bless you Joselyn you look amazing 🙂


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