Snaps from the Magical Night of Pre-Transplant Caroling

I finally got my ass in gear and brought together the pics that were so generously sent to me from Craig Fisher and Barbara Higgins from that amazing evening of surprise caroling in front of my house!  Thanks again to those angels who organized it and to those wonderful peeps who came from far and near to give me such a wonderful send off – I think there were about 200 of you – it really touched me and gave me strength!  Thanks again Craig and Barb!

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UPDATE:  My dad received great news from his doctor at his follow up appointment – all is good!

Today is Day 63 post transplant, and Dr. F is pleased with my blood counts staying steady with no signs of Graft vs. Host Disease (where my body would reject Leason’s marrow).  He’s hinting at lowering some of my medication doses and possibly going from 2 appointments a week down to one.  Yip freaking eeeeeeeee!

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I am a survivor of two extremely rare diseases, thanks to over 100 blood transfusions and ultimately, a bone marrow transplant. My blog, joselynsbrawl.com, chronicles my adventures through medical offices, operating rooms, clinics, transfusion centers, hospital transplant floors, victory celebrations, and finally my bucket list items – all with a humorous and sometimes profane twist. My goal is to inspire others not to give up on life or anything else, and to understand that it’s actually possible to enjoy any experience, even battling a life-threatening illness (or two).

18 thoughts on “Snaps from the Magical Night of Pre-Transplant Caroling

  1. Even pre-transplant you inspire a party! You have many fans, and rightfully so. Very happy to hear both your Dad and you are recovering and going in a good direction. We are cheering for you lots!!! With love, Stacy, n8, Elory and Elias

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  2. Awesome news for both you and your dad. Our prayers continue for both of you. Counting down the days with you and so excited to watch you cross the finish line! Go girl, go! You are blessed and we are blessed because of you. Love Vacco

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  3. I’m soooo glad you FINALLY got your ass in gear! How long do we have to wait to see photos of ourselves (of which I was not in ONE, by the way!)? You act as if you’ve been busy…I mean, I haven’t managed to get around to paying my dry cleaning bill, but I’ve got a lot going on! Granted, you’ve got a few aches and pains, a doctor’s appointment every now and then, maybe a few other things here and there, but come on! How long can you milk those excuses? I know I speak for all when I say I’m relieved to see that you’ve shaken off the doldrums and gotten your act together. Maybe now we can focus on some important things…(;

    Stay well…Cleo said she saw you. It was better than any celebrity sighting. xo

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  4. Next year we can all do it all over again.
    Only we will put you in the middle of the circle and surround you with LOVE and song.
    We are so happy for you guys.
    I’ll take your picture anytime anywhere girl

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  5. Great great great great great great great!!!!!! Love love love love love love love……… Breathe, rest, heal, smile, kiss, touch, talk……….belly laugh out loud!!!! ……and keep that good news coming our way!

    Kristi XOXOXO

    p.s. WHEN you are ready, your mom and I talked that it might be fun to paint or sketch together…….NO “aim” OR, if you want, I will think of a fun simple set up!……….just feeling the paint move around or the pencil on the paper…….its just yummy…..tactile escape! You just say the word and I will be over with basket of all necessary supplies. OR if this sounds dreadful………..use that belly laugh and call me poop!!! 🙂

    IPad – Kristi DeCinces

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  6. I always get so excited when I see that I get one of your updates! Such a great news that things seem to be working!!!! Keep it up! I guess all of those pictures show how much you are loved and you deserve all the love! You have been quite an inspiration to all of us!

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  7. Great news Jocelyn. Love to hear this. Stay the course. As you know I think your courage and attitude are amazing. Love, Bart PS Soon “nurse” Todd wil lbe out of a job!

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  8. Hip Hip Hooray!!!!!!!!! That’s the best news i’ve heard in a long time! The pics of Christmas Carrolers are beautiful & poignant. Makes me want to cry. Keep on truckin’ WonderWoman! You’re amazing. XOXO (Don’t touch the XO’s….cooties)

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  9. Such good news about you and your Dad… What a special evening that was to feel all the love and support for you was truly extraordinary .I was so moved by the beauty of friends and family you are loved by many…
    Love you,
    Jennifer Miller

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  10. Jos, Great pics, greater news. We are so relieved and joyous to know your health is improving and you dad is good. Spring is around the corner and renewal appears to be the new theme. ‘Bout time. Love, Carolee

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