Hairdo You Do?

At yesterday’s visit to City of Hope, Dr. F decided that I need to have blood drawn and meet with him only once a week, compared to twice a week ever since I was released from the hospital.  Yay!  Yay!  Yay!  We were so stoked to hear this new schedule, because recently my blood counts weren’t great, and there was concern I was going backwards.  There was also a chance that I was developing diabetes – bring it on!  Last week, my doc ran a few more tests on me, and the results came back in my favor.  Yay again!  I had type O blood before my brawl when these f-ed up syndromes and disorders began, before I was transplanted with Leason’s type A marrow.  Recent tests have revealed that I no longer have any type A antibodies (which would be normal for someone with type O blood)  (in fact, I now have type A blood).  OMG –  It’s like so totally sci fi 🙂  The graft is strong and my body is welcoming my bro’s marrow!  Today is Day 70 post transplant.

My biggest complaints now (wa wa wa) are:

Swollen Feet:  in the afternoon they begin to blow up and by dinner time, IHFATEOML – I Have Footballs At The Ends Of My Legs.

Numb Knee:  not sure if it will ever be normal again… that’s fine with me and def worth it for being alive 🙂

Shaky Hands:  sometimes the fork delivers to the mouth, sometimes the nose.

Super Duper Cold Sensitivity with my Teeth:  my go-to thirst quencher is luke warm tap water – awesome!  (Bottled water is a no-no on my f-ed up diet.)

These complaints are so minimal, compared with what they could be!  I am HAPPY to be dealing with such easy peasiness!

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I am sporting very sparse 1/4″ peach fuzz under my beanie 🙂  When I was in the hospital, my mom presented me with a super bad ass book she made filled with ideas for hairdos when the time comes.  Other friends have sent photos as well.  I would love to hear any feedback you might have on which winning look I should rock when I have the locks to do so 🙂

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I am a survivor of two extremely rare diseases, thanks to over 100 blood transfusions and ultimately, a bone marrow transplant. My blog, joselynsbrawl.com, chronicles my adventures through medical offices, operating rooms, clinics, transfusion centers, hospital transplant floors, victory celebrations, and finally my bucket list items – all with a humorous and sometimes profane twist. My goal is to inspire others not to give up on life or anything else, and to understand that it’s actually possible to enjoy any experience, even battling a life-threatening illness (or two).

26 thoughts on “Hairdo You Do?

  1. Amazing to see yiu and Todd drive by today!!! Sorry for delayed response- if I recognized you both sooner I would have jumped for joy but didn’t have my glasses on!!!! Great news and the hair shouldn’t be anyone other than you and your amazing style!!!!

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  2. How wonderful to hear things are looking UP! Yay! You are a testament to the saying that “laughter is the best medicine” . Your positive attitude and sense of humor continues to help in your healing, I am sure. Keep it up! love, Terri

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  3. Jos,
    Here are my votes for hairdos in order of progression – 30, 54, 48, 62, 9, 55, 37 – then you are home free. XOXOXOXOXOXOXOXOXOXOXOXOX

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  4. u-r-my-fing-shero – stay sans hair and get eyeball tattoos – as the ‘A’ formerly known as ‘O’ congrats and glory halelu to the ya-ok let’s talk designing fashions for picc lines a gtubes and get this book/movie sold…

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  5. Congrats on all the good news! I would definitely go with 27, beach ball head. You can do it soon and it’s sooooo much fun to have colored hair! Let me know if you need a hand at coloring it!

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  6. Ok Jos, I’ve always loved JL Curtis’ short gray hair. One day I’ll do it. You’ll look amazing however you decide cuz you’re amazing. Just don’t sport a “meat” hat !

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  7. Cheryll McDowell votes for #58. But it might come back really curly so in that case I’m going with the Crocheted Peacock. Keep em coming!

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  8. Jos,

    Great news! I am in New York with Annette, Julene and Jill and I read the blog to everyone! We are excited about the news and are praying for and hoping that the side effects improve. Love you and thanks for the update!

    Gretchen

    Sent from my iPhone

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  9. LOVING #10…..if I was younger and lighter I would SO go there!! YOU would totally rock it! (If doc says ok about chemicals on hair (prob not!), you would also rock that color!).
    Jos, we are so very happy you are kicking these challenging, shitty things…..WITH an amazing, amazing, amazing attitude!!!!
    You are brilliant! We are learning from you. We thank you for that gift……..XOXO

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  10. Well, my computer showed me the original photos and numbers first, then the nice summary popped up later, so to translate my choices from the numbers I just posted, they are 17, 39 and 56. Again, looking for show stopper quailty here.

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  11. All kidding aside, with your gorgeous face, you will look great with any short hair style. I really do like 36 and 58. I have been looking for short haircuts so thanks for doing all the work! It is always so wonderful to hear from you on your blog! We love you Jos and pray you will continue to improve!!! xoxo

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  12. I’m loving the Little Dipper, but #14 could totally rock with your fashion line if what you wore to JEVO’s engagement party last summer is part of your designs. XXOO from all the Ryders near and far.

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  13. I’m thinking 54 … a bit of a red-headed rocker to go with your nice, new type A. So wonderful to hear all of the good news. Keep it coming even if you decide on a nice Katy Perry blue. xo

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  14. Hi Jos,
    So glad to hear things are going well. We hope you continue healing & getting stronger everyday. Any of the above styles will look awesome on you, cause you are beautiful inside & out! Also I heard football feet are in for Fall.

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  15. Hi Jos – well thanks for all the ideas for weddding hair-dos! I was wondering how to wear my hair and now I have lots of fabulous ideas! So glad to hear you are on the mend – we are all missing you very much and can’t wait to see you out and about! xoxoSue

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  16. 7, 16 and 42 have our votes. Might as well go BIG. And I can see a sense of humor runs in your family – your mom did some serious research on this. How trippy with the change in blood type. You should ask Ketih Richards if he had the same phenomenon when he good the blood transfusions to get the heroin out of his system. Excellent that things are proceeding in right direction. Sending you thoughts of health!! Love, the Singers

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  17. No one looked better than Charlize Theron last night at the Oscars! Short hair is in…look at me!?! Are your stubbles coming in white? That was my surprise after chemo… Kisses. Lynn

    Sent from my iPhone

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  18. I’m kind of disturbed by some of these hairdos. I guess some people out there have some very strange hair fetishes! That said, I think the violin and giant lips are my favs… So glad you’re getting good news these days…

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  19. #25 of course rocks…it’s the giraffe all the way and don’t you forget it!
    Jae knows! Hair is a bit over rated and you’re going to love your short locks when you get them! Peach Fuzz is wonderful…and very low maintenance!

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