After surviving my inner lids being stabbed by 150 needles, I was beyond stoked to be rewarded with “normal” eyes, something that’s eluded me for years. Finally! I can apply a little Mac, Laura Mercier and Lancôme. Ya, that didn’t last. Intraductal meibomian gland probing was an utter quagmeyere. A big fat f-ing fail. After a couple of glorious, tear-free weeks, my eyeballs backpedaled into Sucksville.
Time for a second sixth opinion. Apart from my new doc’s last name comprised of the first four letters of a funny (to a third grader) word that kept causing me to giggle during my exam, I thought he was really inspiring. He thought I was like really immature. His recommendations have worked magic so far and he has a long list of additional possible remedies if it all goes to hell. One of these alternatives is using my own stem cells to make abracadabra voodoo eye drops!
My fourth transplanniversary was celebrated as usual with my family at Disneyland. Our three generations had a great time zigging and zagging our way through Fantasyland, Adventureland, and of course, Tomarrowland! My sucky eyes are always peeled for Leason’s and my mascots, the Tweedle twins ~ they must be shy. Or maybe Dee and Dum want nothing to do with a crazed bone marrow transplantee seeking awkward hugs and selfies.
To further the celebration, Leason and I met up for lunch in our family’s hometown of Old Towne Orange, CA with our parents. Pomeroy family rule #31.7: never turn down an opportunity to partay.
My trips to City of Hope are always a time of reflection and appreciation for all of the fantastic peeps who saved me and continue to keep me well. The wish trees at the entrance are a powerful reminder that I am a very lucky girl.
Lucky for many reasons, including the chance to cross sh*t off my Buttkick List. Recent checkoffs include √throwing a pot on the wheel under the expert tutelage of my friend and super supporter, Mary. Despite splattering clay all over her studio, I loved the feel of the smooth, wet clay in my hands. Oh, and the photo of Ryan Gosling.
I enjoyed √cliff jumping on Siargao Island in the Philippines, too. After swimming into a dark limestone cave, then climbing about 30 feet of stalagmites, our group exited a cranny (first time I’ve ever used that fun word!) in the stone wall and jumped into the river below.
I am just beginning to √learn the game of golf, enduring enjoying a lesson and a quick round. Despite almost taking out a greenskeeper with my unintended fade and the sweat-drenched clubs barely adhering to my problematic grip, it was tolerable fun. I have a long way to go with my pathetic golf game. I just hope I have a long way to go.
JOSELYN'S BRAWL 
Hi Jos…You are going to write a book, right? You write so well… and humor is always present…Hope the next treatment clears your eyes up for good…xxoo Auntie Caryll >
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That’s the plan, Auntie! I loved your book! Thanks for the well wishes – you are a sweetie! XO
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You remain always my hero, Joselyn. Sending over some cosmic eye restorative, just in case.
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Susie – You are my uber supporter, and I can’t thank you enough for all of your incredible words you’ve sent my way over the last 5 years!!! XO
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I hate to say it Jos, but you look better in shades. Cool that you are throwing a pot! That picture brought back memories of many hours spent on the wheel – very fun times with uncle Jon and me at ASU using up all the clay in the ceramics department for our commercial ventures. Seriously, I hope you can reach some kind of normality with your eyes. They look painful. So sorry to see you are still having problems with them.
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I was thinking of you and Uncle Jon when I was sitting there, cursing at the non-cooperative clay. Not because of the cursing, but because of all the far out ceramics you guys produced. I love the brilliant idea of having ASU fund your commercial ventures! Thanks for the love and support! Right back at ya! XO
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Jeez Jos! So sorry to hear about your latest ass kicker!! The humor you pull out from who knows where, never ceases to amaze!! You’ll get through this, just like you have everything else, that has been unfairly hurled your way. Sending you love and good vibes that hopefully this nightmare of yours will end once and for all. xoxo Duke & Katie
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Thanks, Katie, for your continued support! Love to you and Duke!
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As I’ve said before u are amazing and I love your blogs. Such a great sense of humor with all you’re going through. Love, Sharon
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Thanks, Sharon! You are a wonderful friend! XO
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Hi Jos. Sorry the eyes don’t have it yet.
So we look to a more successful tomarrow for that piece. Trooper Jos will see to that.!!💪
Gotta love the buttkick list!!
Love the pot. Demi Moore could do no better. That sucker is “checked off”.
Seeing you on the links is a beautiful a beautiful thing. Hang in there. Check it off!!
NOW TO CLIFF DIVING AND THE PIC OF RYAN GOSLING!
What chu talkin’ about there Willis?
Is the pic of Ryan or at least his calves?
Or is it you in a very masculine diving outfit ?
So do we check off the cliff diving or the pic of Ryan on the butt kick list ?
I’m keeping tabs and need to know!!
Love and keep the blogs coming.
Happy 4th, and at the 5th celebration, met success and buttkicing!!❤
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Bart! I SO appreciate your attention to detail and inquisitiveness :). Ryan keeps an eye over the ceramics studio from his photo on the wall. I’m sure his calves are much prettier than mine. Love the Demi line :). That is me cliff jumping in a one piece/board shorts ensemble – my uniform whenever I go cliff jumping, just in case I have a bathing suit malfunction :). Thanks for being you! XO
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Hang in there…you are an inspiration and amazing in ALL you do!!! xxoo
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Thank you, Chris! Your support means a lot! XO
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Always enjoy your updates. Sorry to hear your tear duct problem is back. Sucks!
Throwing pots!!!… now that’s cool!
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Thanks, Nettie! Love to you and all your boys!
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You are always inspiring. Miss seeing you!!! 💋💋💋
Sent from my iPad
>
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Thanks, Sue! I miss you, too! I hope all is well with the beautiful Braks! XO
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Thanks for the update Jos. Love your bucket list❤ That is a great Family pic at Disney. I though Andi was Kesha(sp?) Stay well and sassy forever!
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Thanks, Cheryll! We had a great time being sassy at the Magic Kingdom :). I know, Andie is looking a lot like Kesha and now she’s taller than her mom! Love to you and John! XO
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Joselyn,
I have a feeling you not only have a long way to go, you’ll have lived several lifetimes over the rest of us simple mortals.
You are so inspiring and the story of your continual journey brings a smile to my heart. Thanks for sharing!!
xoxo
LInda Mason
________________________________
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Linda! You are SO sweet to share these wonderful words. Thank you so very much for the positive encouragement! I hope all is well with the Masons! XO
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Those green/red eyes reminds me of some of Emilie”s adventures. You just seem to keep on ticking. At a girl–you’ll make it. Love you, Bob
On Sun, Mar 26, 2017 at 1:11 PM, Joselyn’s Brawl with Shulman’s Syndrome & Aplastic Anemia wrote:
> joselynmiller posted: “After surviving my inner lids being stabbed by 150 > needles, I was beyond stoked to be rewarded with “normal” eyes, something > that’s eluded me for years. Finally! I can apply a little Mac, Laura > Mercier and Lancôme. Ya, that didn’t last. Intraductal m” >
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Bob – Your consistent support means so much to me! Always powerful words from you! Thank you so very much! XO
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Keep kicking ass!
I pray it stops challenging you. XOXO
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The kicking with never cease :). Thanks, Jeri! XO
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Keep up the adventures Jos! You continue to inspire!!! XOXO
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Thanks, Kathleen! You continue to support, and I greatly appreciate it! XO
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Through your challenges you have not been conformed to this world, but are transforming lives to live beyond this world and see that there is always joy and adventures to reach out and grab. Thanks, Jos!! Love you.
Marilyn
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Marilyn – Such sweet words from a very sweet friend! Love you! ttf XO
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You never cease to amaze me and I love your humor, wit and most of all you! So glad to call you my friend!
Xoxo, Jae …your friend forever in crime and I do mean forever and ever
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and ever and ever! Laughing with you is THE BEST!
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Jos, you are such an inspiration. Can’t wait for your book. Keep up the good work.
Love, Bonnie
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Thanks, Bonnie! Your support means a lot! XO
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