I recently attended a fundraiser for the Orange County Ronald McDonald House (an incredibly wonderful facility that allows families to stay close to their seriously ill children being treated at hospitals in Orange County), and as I perused the silent auction offerings, one item stood out to me as if sirens were blaring and lights […]
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To commemorate my fifth transplanniversary, I got me some ink and placed another √ on my Buttkick List. A little dark purple gift box with a cursive L for a bow to be exact. I had it placed around my transplant scar, where Leason’s miracle marrow entered my body through the PICC line in my […]
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In New York, the western part, On micro roads, not found on a chart, Fields, farms and pastures galore, Acres between each lonely barn door. Cruising down the tiny lanes, Suddenly, my neck swivels and cranes! There, riding on her bladed throne, A country woman, her grass half-mown. “Look!” I squeal, and point […]
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I recently received a message from a woman who found me through a Google search, which pointed her to this blog. Her sister has been diagnosed with eosinophilic fasciitis (Shulman’s Syndrome) AND aplastic anemia. Those are the same extremely rare diseases that I was diagnosed with a few years ago. I would venture to guess […]
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After surviving my inner lids being stabbed by 150 needles, I was beyond stoked to be rewarded with “normal” eyes, something that’s eluded me for years. Finally! I can apply a little Mac, Laura Mercier and Lancôme. Ya, that didn’t last. Intraductal meibomian gland probing was an utter quagmeyere. A big fat f-ing fail. […]
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Zeus and his fellow gods and goddesses on Mt. Olympus must really be Greecing the skids for me. It seems every time I’m ordered to spend weeks off my feet, Zeus sends his special spectacle to the rescue! Back in 1988, I went into preterm labor with Mychaela and was put on bed rest for eight weeks, […]
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My son, Rex and I reported to Pamplona’s Plaza Consistorial, joining the other couple thousand runners (encierros) before 7am. Some were praying. Some were rereretying Nike laces. Some were doing nifty 1960’s-style warm up moves/stretches. They were male. They were young. They were eyeing me with a “What the f are you doing here?” look. One came […]
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Another Bucket List day was provided by our friends, the Friedmanns, who formed a team to benefit the wonderful organization, Shatterproof, by rappelling down a 16-story Newport Center office building in Newport Beach, CA. Hell yes! Where do I sign? My long-time friends, Kathie and Kathleen were assigned as my co-rappellettes, and I was stoked! We […]
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I am a very lucky girl/boy (see post Come On, Man!) for many reasons, but a biggie reason is my fantastical friends. Two of my bestest girly friends, Jae and Kristin, thought it would be fun celebrating my gender confusion/double DNA with a Dudes’ Day Out. Who the f am I to say no to that? Off […]
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Hey Kids! Does anyone know what time it is??? If the words ‘Howdy Doody’ are coming to mind, you are WRONG! (and kinda old) The correct answer is: I’m excited to NOW have a constant reminder that NOW is the time to do all those things you plan to do ‘someday’! None of us kNOW when […]
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JOSELYN'S BRAWL 