‘Twas a year since my transplant, when all through the home, Not a thing was un “done”, not even the throne. The tree was covered with meds, masks and gloves As a gesture of thanks for the care from above. ——————————————————————————————————————— To further celebrate hitting the one year mark, 10 members of my family decided […]
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To celebrate the upcoming 1 year mark since my transplant (December 14, 2013), and to honor my 2 biggest heroes – Todd, the world’s best caregiver, and Leason 4, the world’s greatest donor – my parents threw a shindig to thrash and trample all shindigs that have come before. Due to my chemo brain (CBIART […]
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bad-ass-er-y [bad-as-ur-ree] noun 1. the art of behaving so exceptionally as to be mind blowing synonym: ultra-coolery antonym: douche baggery —————————————————————————————————————————- I have been surrounded by supreme badassery as of late and I want to share my good fortune with my dear readers 🙂 —————————————————————————————————————————- At last Saturday’s USC football game, the former Trojan volleyball […]
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Here’s some recent newsery and updates on my brawl: Dr. Fantastic took me off Prednisone at my last appointmentation with him! He had a great discriptivious way of announcing it 🙂 MNILTCCABB – Now Maybe I’ll Lose The Chipmunk Cheekery And Buddha Bellyness. Last week, Todd and I took a little road trippage up […]
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My Graft vs. Host symptoms were getting worse, so Todd urged me to email Dr. F to alert him. I was not scheduled to see him for another 10 days, but he emailed back immediately and told me to come in the next day and he would squeeze me in. So, back up to COH […]
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Today marks Day 172 post bone marrow transplant! One year ago, I went to see my internist, Dr. C., for “stiff muscles,” and she referred me to a rheumatologist, an infectious disease specialist and a neurologist within a week. I had no idea what the next year would entail: 263 blood tests, 4 bone marrow […]
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We’ve received some good news 🙂 The pneumonia infection in my lung has gotten smaller, according to a follow-up X-ray. It appears to be fungal, not bacterial, which makes it more difficult to off, but I’m being pumped with endless IV antibiotics and anti-fungals round the clock. I will have a follow up CT scan […]
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After a relaxo Sunday, I woke up on Labor Day Monday with the chills – exactly what my new doc, Dr. P, of City of Hope told us was the worst possible thing for me at this time. We headed to the Hoag Cancer Center for AFBT (Another F-ing Blood Test) and possible transfusions early […]
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HOPE – (Have Only Positive Expectations) Friday was the best day in a long time. We drove up to City of Hope in Duarte, where my Newport team of docs decided I need to be at this point. Didn’t really know where the hell Duarte was previously, but we now have the route memorized and […]
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Before I ever had a transfusion, I thought of them as scary, critical and dangerous. I never EVER thought I would need one. At this point, I’ve had 14 of them, and I now equate a transfusion to a chill sesh – relaxing in a lounge chair, reading, watching TV or a movie, and visiting […]
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JOSELYN'S BRAWL 