Solidarity is Solid

Health and Wellness, Health Humor, , , , , , 69 Comments

There have been several acts of solidarity that I wish to recognize because they are f-ing awesome!!!

First, my hubby, Todd, not only surprised me with a buzz cut the day after I had my head shaved, he also went for a big fat purple  “J” tat on his left deltoid!!!

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Guy Kornblum, Kilimanjaro and Everest climbing partner, fellow SAS F’02 shipmate, and all around bff, also shaved his head in solidarity!

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Brendan Geck, fellow SAS S’09 shipmate, decided to shave his head in front of all of our friends on the Jan. 2013 SAS Reunion Voyage.  He did it oh so appropriately on the Miller Court of the 7 Seas!

215682_10152432572700492_1321812212_n-1I want to thank you all for your kick ass support of me and my battle!!!  Sorry if I missed anyone!

I had my 2 of my favorite nurses at City of Hope come into my bubble for a sunrise shearing on about the 4th day after my chemo finished, because my hair was coming out by the fistful.  I couldn’t resist the urge to go with a mohawk, so I could feel kinda bad ass, just for a little while.  Maybe it was the fact that I had hit the morphine button a few too many times that morning…  It was the first mohawk they had done on a patient, and they wanted their work documented, so, here I am with my PIAB – Prednisone is a Bitch chipmunk face and mohawk, thanks to Sara and Roberta 🙂

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I know the curiosity of my present hair sitch is killing some of you, so here I am in all my egghead glory – I don’t give a sh*t anymore.

I probably won’t see any growth for a few more months…  Until then, I’m rocking my beanie collection 🙂

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I am a survivor of two extremely rare diseases, thanks to over 100 blood transfusions and ultimately, a bone marrow transplant. My blog, joselynsbrawl.com, chronicles my adventures through medical offices, operating rooms, clinics, transfusion centers, hospital transplant floors, victory celebrations, and finally my bucket list items – all with a humorous and sometimes profane twist. My goal is to inspire others not to give up on life or anything else, and to understand that it’s actually possible to enjoy any experience, even battling a life-threatening illness (or two).

69 thoughts on “Solidarity is Solid”

  2. Lovin it jos!! Love that you’re back up posting too!!! You look and are BEAUTIFUL! So glad to see your big, beautiful smile again! Hugs, love, and prayers to you, Tmills, Armin, and mych xxoo

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  4. So Glad to see a SMILE on that bald little head! You are so cool Jos! The hair will be back soon and it might surprise you! Love Ya, Cheryll & John McDowell

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  6. I don’t know what to say but….YOU ARE AWESOME!!! and so are you family and friends! I love the TAT Todd! Loved the picture of you at the beach. I’m sure it felt like heaven. So happy that you are home and in full recovery. XXOO

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  11. You shouldn’t give a shit!! You are, always have been, always will be one of the most beautiful people most of us have ever known! A true beauty inside and out!! One of the most beautiful ever, I might add. You sure inspire the shit out of me! Your light shines to show all the way my sweet. Keep it up as the many thousands that you touch are awe struck and given hope that we too may one day find the strength and courage you so easily display. You beyond rock sweet darling you, and we are humbled by your amazing self! Hugs strength & Love. 😘 Nanc’ and Family

    Sent from my iPhone

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  17. I don’t know Jos … I’m kinda thinkin’ the tat was a ploy by Todd to bring attention to those “guns” of his. Just sayin’.

    Kidding aside … I love the tat and I love seeing the countless ways Todd loves and supports you!

    Sending love and bacteria free hugs!
    Les

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  20. Bald is beautiful, just ask your dad and me. Glad to see your have revived your bad ass attitude and that you are progressing so well. You are in our thoughts every day. Love to you and Todd. Lynn and Carolee

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  23. BooBoo, you’re adorable no matter what! Love the mohawk! Soooo relieved that you’re at home & in the home stretch(pardon the equine reference) of this brawl with Schulman. Love ya!

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  25. Joselyn, I’m a firm believer that if you are beautiful on the inside, then your outside will match…and we all know that you have a beautiful and wonderful heart!
    Wishing you nothin’ but good medical reports ahead!

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  26. JOS, YOU ARE SOOOOOO AWESOME!!! And of course you have the most awesome husband and friends to go with all that awesomeness!!
    Keeping you in prayer daily and am thrilled you’re home and sharing that wonderful sense of humor! Love you, Linda…and always, Ryan xoxox

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  28. You are amazing! Even without hair, you are still beautiful! I do hear it grows back really thick with curl. You will look adorable with some curls! All kidding aside, it is so good to see you and know that things are looking up! Just like Todd’s “J” tat (pointing up)! Love ya and keep on getting better!!!
    xoxoxo
    Nancy and Gary

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  29. Jos,
    Beautiful and a perfect shaped head to boot! Show it off for you’ve got it going on when it comes to what really matters. Love that about you, always have. Seeing you smile made my day! xo

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  33. My dear Joselyn~ You are absolutely beautiful and radiant! I have to give you credit…you are rockin’ the pred face and I frankly am a bit irritated that you can manage to look so lovely, as I basically looked like a fat pig on the stuff! Good for you and just want you to know I think you’re amazing just the way you are…XO

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  34. Your courage and bravery is astounding! You look beautiful. Thank you for showing us all how to live life to the fullest. The Millers are always trend setters!

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  38. Your big beautiful smile warms my heart!! How wonderful to know you are home and doing so well…You are a true inspiration to everyone.
    Love, Terri

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  39. Bless you jos- u are as beautiful as ever. Maybe even more beautiful because we can see the light of your true beauty in your new no frills hair do. Good for you and keep up the great progress! You have so many people who love you!

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  40. I love you and I want to come visit you your beautiful soul so please let me know when I can bring you some presents!!!’maybe a new yellow wig???

    Melissa Sassypants Corrigan

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  41. Joselyn, You are truly one amazing lady. You look awesome and I’m so glad things are going so well with your BMT. Keep kicking ass 🐎🐎🐎 Julene😊😊

    Sent from my iPhone

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  42. Joselyn, nothing I can say that hasn’t already been said. Just one more person in awe of your strength and wonderful friend and family support. You’re a special lady indeed and loved by so many. So happy and relieved that you’re well on your way to the road of recovery. Rhea

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  44. Jos,
    Your beauty and light shine through your soul. You are an inspiration …Keep on healing and shining ..You are so loved and admired..
    Love you so much,
    Jennifer Miller xoxoxoxox

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  45. You are def a bad ass and a beauty as well. Only you could inspire such supreme solidarity . We are in awe.
    Love and hugs
    Robin and Scott

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  47. Jos,

    What a great post! I love the pictures and you are gorgeous! It is so fun to see your beautiful face. I miss you and we continue to pray for you. Xoxo Gretchen and Dick

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  49. Jos or rather Hairless Jos,
    Todd is sooo supportive, J is a great initial too! you look wonderful! Thank u for the masks! I’m going to decorate them for Valentines Day 🙂 ! U sound like you are doing so well an answer to prayers! Keep it up!

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  50. If I thought I’d look half as lovely as you do bald, I’d totally go for it! I know why you’re here: it’s to spread that radiance that refuses to quit! In fact, I think it’s even more insanely strong than before all this nonsense started. Seriously! How can you look like that after what you’ve been through? You have a gift. Your spirit is your very rare gift. Thank you for sharing it with all of us. xo Samantha

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